Terms & Conditions

This website is an educational and informational service provided by the PKD Foundation, with the express condition that users agree to be bound by the terms and conditions set forth in this User Agreement, as they may be modified from time to time. Your consultation and use of this website constitutes your acknowledgment and acceptance of all of the following terms and conditions.



You acknowledge that the information on this website is provided "as is" for general information only. This website does not offer medical advice or recommendations and individuals should not rely on the information posted on this website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. The PKD Foundation strongly recommends that care and treatment decisions related to polycystic kidney disease and any other medical condition be made in consultation with a patient's nephrologist or other qualified health care professionals who are familiar with the individual's specific health situation.

The PKD Foundation makes no representations with respect to the information, services, products or message on this website and specifically disclaims any other warranties, including but not limited to implied or express warranties of merchantability or fitness for any particular usage, application or purpose. The PKD Foundation makes no warranties of any kind regarding the operation of this website, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements or other code that manifest contaminating or destructive properties and such warranties are expressly disclaimed.

Donation Disclaimer

Please consult your personal advisors on all legal, tax, or financial issues related to your gift or personal matters. Nothing contained on this website or in any of its documents, attachments, or links: (a) should be considered legal, tax, or financial advice, (b) represents the signature of the sender or PKD Foundation, (c) is intended or written to be used, and cannot be used for the purpose of avoiding tax-related penalties.

For information about the specific tax benefits to which you may be entitled through your charitable gifting of appreciated (or even depreciated) stock or securities, please consult your tax advisor or attorney.

PKD Foundation Discussion Forums

PKD discussion forums contains user-submitted content, comments and opinions, and they do not necessarily reflect the views and opinions of the PKD Foundation. Information shared in the forums is not medical advice. Please consult your nephrologist or health care team for information and guidance specific to your health. 

Content in the discussion forums is searchable. You can post anonymously or through a username you create, so your name will not be used unless you choose to do so.

Discussion forum participants are required to adhere to the following guidelines:

  • Use appropriate content and language. Any posts that contain personal attacks, profanity or inappropriate images or links will be removed.
  • Make sure your posts contribute to the conversation and on-topic.
  • Share your personal thoughts, ideas and experiences. Do not infringe on intellectual property rights including copyrights and trademarks of other individuals or organizations.
  • Do not share personal information such as addresses, phone numbers or email addresses.
  • Spam, advertising, self-promotion or solicitation of any kind is prohibited.

Failure to adhere to these guidelines could result in your post being removed and your account being suspended.

Links From This Website

The PKD Foundation makes no representation, warranty or endorsement, express or implied, as to any of the information, services, products or messages on any other websites which may be accessed through a hyperlink on this website. In particular, these links are provided for convenience of reference only and are not intended as an endorsement by the PKD Foundation or individual operating the website or a warranty or endorsement of any type regarding the website or the information, services, products or messages posted on or available from such website.

Copyright and Trademark

Unless otherwise indicated, all information contained on this website, such as text, graphics, logos, button icons, images, audio and video clips, is copyrighted by and proprietary to the PKD Foundation. The content displayed on any page of this website may be used for personal and noncommercial uses which do not harm the reputation of the PKD Foundation, provided that the user does not remove any trademarks, copyright and any other notice contained in such content.

The name and mark, the PKD Foundation and its attendant logos and taglines, are trademarks of the PKD Foundation and may not be used or reproduced without its prior written consent.


You agree that you will hold harmless the PKD Foundation and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this website or the information, services, products or messages contained in this website or other websites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this website or another website to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will the PKD Foundation or the contributors of information to this website be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages.


Governing Law

This website (excluding linked sites) is controlled by the PKD Foundation, which is headquartered in the State of Missouri, United States of America. It can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of Missouri, by accessing this website both you and the PKD Foundation agree that the statutes and laws of the State of Missouri, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this website. You and the PKD Foundation also agree and hereby submit to the exclusive personal jurisdiction and venue of Jackson County, Missouri and the United States District Court with respect to such matters. The PKD Foundation makes no representation that materials on the website are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this website from other locations do so on their own initiative and are responsible for compliance with local laws.

Linking From Other Websites

The PKD Foundation may grant the owner of a website permission to use a hyperlink to this website from its website, provided: (a) any such link must clearly be marked "the PKD Foundation;" (b) the appearance, position and other aspects of either the link or the host website may not be such as to damage or dilute the goodwill associated with the PKD Foundation's name and trademarks; (c) the appearance, position and other aspects of either the link or the host website may not create the false appearance that any other entity is associated with or sponsored by the PKD Foundation; and (d) the link, when activated by a user, must display this website full-screen and not with a "frame" on the linked website. The owner of any website with a hyperlink to this website agrees to the foregoing terms and agrees to delete any such link upon notice from the PKD Foundation that such permission has been revoked, which notice may be given at any time and for any reason.

The PKD Foundation is not responsible for the information or materials contained on websites linking to this website. Links to this website are provided for convenience of reference only and are not intended as an endorsement by the PKD Foundation of the organization or individual operating the host website or a warranty of any type regarding the host website or the information on the host website.

Opt-Out Policy

If, at any time after registering for information or an event, you change your mind about receiving information from us, you have the ability to opt out of being contacted by the PKD Foundation at any time.

To opt out of receiving emails, telephone solicitations or other forms of contact from the PKD Foundation, send an email to pkdcure@pkdcure.org with "Opt-Out" in the subject line, or a letter by postal mail to:

PKD Foundation
ATTN: Opt-Out
8330 Ward Parkway Suite 510
Kansas City, MO 64114

Please specify which particular type of contact you are choosing to opt out from (i.e. only solicitations, only emails, only information regarding a specific event, only postal mail, only third-party emails, etc.).

Be sure to include your full name, any business mailings and email addresses. If we are able to locate your contact information based on the information you provide us, it will be removed from the areas you referenced in our databases and mailings lists.

Your Organization

2000 Daniel Island Drive, Charleston SC 29492
Phone: 800.443.9441 | Fax: 843.216.6100

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©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.

©2016, PKD Foundation ·The PKD Foundation is a 501 (c)(3), 509 (a)(1) public charity.