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Chief Executive Officer


Established over 30 years ago, the PKD (Polycystic Kidney Disease) Foundation is dedicated to finding new treatments and a cure for PKD, one of the most common, life-threatening genetic diseases. The Foundation is the only organization devoted solely to this purpose. While the primary focus is raising funds for research, this national foundation also promotes education, advocacy, support and awareness of this disease, which affects thousands in this country and millions of all ages world-wide. The PKD Foundation, a 501(c) 3, is headquartered in Kansas City, Mo. and has 62 chapters throughout the U.S.


The CEO will be the public voice of the PKD Foundation and actively pursue strong relationships with donors, researchers and appropriate federal agencies.  With the help of staff and the nationwide Board of Trustees, the CEO will develop and implement a strategic plan that addresses support for families affected by PKD, volunteers, staff and donors and promotes research. The CEO provides leadership for fundraising among key constituents. The CEO will be responsible for inspiring a positive work environment for the Foundation’s current staff of 30 and manage the $8 million annual budget in order to achieve the agency’s missions.


  • Demonstrate a passion for the Foundation’s mission as the key representative of and spokesperson for the Foundation to benefactors, policymakers, federal agents, corporations, physicians, scientists, news media, volunteers and families with PKD.
  • Provide the necessary vision and leadership to staff, the Board, and volunteers in order to carry out that mission.
  • With staff and the Board of Trustees, develop strategic plans to ensure that the PKD Foundation grows in its ability to promote efforts toward treatment, advocacy and support.
  • Hold primary responsibility for managing the budget and ensuring sustainable, diverse funding streams.
  • Continually assess organizational capacity and capabilities in relation to strategic priorities.
  • Attract, retain and engage effective employees and foster a positive work environment.

Resource development (fundraising)

  • Set the overall strategic fund development strategy to support research initiatives and other programs. Build a progressive program for fundraising that achieves growth and sustainability.
  • Direct a comprehensive development platform that includes annual giving, major giving, planned giving, corporate support, and foundation grants/gifts.
  • Plan and implement a major gifts program including donor cultivation, solicitation and stewardship strategies.Direct capital campaigns and other major fundraising drives.

Board relations

  • Serve as the principal resource to the Board of Trustees and its committees.
  • Maintain an open dialogue with the Board regarding the agency’s mission, activities and plans.
  • Engage with the Board in the best use of each member’s expertise, location and interests.

Professional qualifications

  • At least ten years’ experience in senior management in the non-profit sector.
  • Advanced degree, preferably an MBA or MPA.
  • Ability to envision and convey the organization’s strategic future to the staff, Board, volunteers and donors, and a nationwide community.
  • Strong fundraising experience, an understanding of non-profit fundraising strategies and donor relations unique to the non-profit sector.
  • Previous success in establishing relationships with individuals and organizations of influence including national organizations, federal agencies, foundations, providers and volunteers.
  • Possess a history of achieving/exceeding goals, improving bottom line, evaluating program performance and growing organizations under his/her responsibility.
  • Extensive personnel management experience and a willingness to actively engage with personnel.
  • Solid budget and financial management skills.
  • Strong organizational abilities, including planning, delegating, and program development and support.

Desired leadership qualities

  • High personal integrity with a strong work ethic and high level of energy.
  • Strong written and oral communication skills.
  • Passion for the PKD Foundation mission.


The projected compensation range for this individual will be competitive and in accordance with the background and experience of the selected candidate. The agency has a strong insurance package including health and dental with a generous employer contribution. Benefits also include employer contributions to a 403(b) retirement plan.


PKD Foundation firmly supports the principle and philosophy of equal opportunity for all individuals, regardless of age, race, gender, creed, national origin, disability, veteran status or any other legally protected categories.

Application process

Submit resume to Anna Stone, The Moran Company

Apply now

Chief Development Officer (Exempt)

Polycystic kidney disease affects approximately 1 in 500 individuals. It is one of the most common, life-threatening genetic diseases that typically leads to kidney failure, requiring dialyses and/or kidney transplant. There is no cure or approved therapy in the United States. The PKD Foundation in the only organization in the U.S. solely focused on PKD, and is highly engaged in research that will hopefully lead to a therapy. The Foundation funds many research initiatives and works closely with pharmaceutical companies, the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). We rely 100 percent on private donors to fund our mission of promoting programs of research, advocacy, education, support and awareness, to improve the lives of all it affects. The PKD Foundation is looking for our next fundraising leader. This is a unique opportunity for a seasoned fundraising professional to make a difference in the lives of our patients and their families suffering from the effects of polycystic kidney disease.

Reporting to the CEO, the Chief Development Officer will be responsible for the strategic direction for development, providing strong leadership for fundraising initiatives, and managing a team of results-oriented, passionate staff. Our new CDO will have the relationship skills that are necessary to continue to engage our existing donors and an understanding and entrepreneurial know how to develop new revenue streams. The CDO will be a key member of the Foundation’s executive team, and work collaboratively with Chief Scientific Officer, Chief Marketing and Communications Officer, and Chief Operating and Financial Officer.

This is an exciting time for the PKD Foundation and the PKD community. A campaign to significantly increase the funding for research is currently being planned and the new CDO will be a highly visible leader in the campaign execution.

You will be working from the national office of PKD in Kansas City, Mo. Kansas City is a vibrant community, with world class facilities for the arts, abundant shopping and dining. Kansas City is home to several professional sports teams including the Kansas City Chiefs, World Series Champions Kansas City Royals and Sporting KC. And of course, we like our world famous barbeque. Kansas City has something for everyone.


  • Leading a comprehensive national development program and providing execution within the strategic plan.
  • Developing a balanced mix of donor sources and solicitation programs that will enable the PKD Foundation to attract, retain and motivate donors and fundraising volunteers.
  • Developing operational objectives that enable the PKD Foundation to achieve financial objectives.
  • Designing and assuring implementation of cost effective fund development programs, employing economy while maintaining an acceptable level of quality and solid return on investment.
  • Developing, coaching and managing a high-performing and empowered development team, including fundraising volunteers across the country.
  • Managing the overall operations of the development initiatives and ensuring cross-functional collaborative engagement with other departmental teams.
  • Appropriately representing the PKD Foundation, its board and CEO to donors, prospects and volunteers.


  • Strong major gift experience, with a proven track record of working with donors at the six-figure gift level.
  • Campaign experience, with an exceptional understanding of campaign planning and execution
  • A keen analytical ability to align fundraising programs with expected financial outcomes.
  • Results oriented, goal driven passion to achieve organizational goals.
  • Exceptional interpersonal, relational and communication skills
  • Intelligent, visionary, inspiring, highly collaborative, humble, high-energy leader with exceptional interpersonal and relational skills.
  • 10 years senior development experience
  • Significant experience in developing and empowering high functioning teams
  • Bachelor’s degree required; advanced degree preferred. CFRE designation is highly desirable.
  • A strong understanding of technology, Blackbaud’s Luminate and Raiser’s Edge experience preferred.


We value our employees’ time and efforts. Our commitment to your success is enhanced by our competitive compensation (commensurate with experience) in addition to an extensive benefits package including:

  • Paid time off – 27 days
  • 11 paid holidays
  • Medical, dental and vision benefits
  • 403(b) 7.5% of salary, no match required

We work to maintain the best possible environment for our employees, and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To apply:

Qualified candidates are encouraged to forward their cover letter, resume and salary requirement to:, or fax your information to: 816.268.8497. Please reference “Chief Development Officer” in the subject line.


Administrative Coordinator (Non-exempt)

Supervisor: HR/Office Manager

Primary function:

To provide administrative and program support for various programs and to improve the overall functioning of the Foundation’s corporate office by performing a variety of general office activities.

Duties and responsibilities:

Research and Development

  • Provide grant administration support including maintaining records, coordinating report reminders and check requests
  • Provide general R&D support in the areas of:
    • Answering phones, fielding questions about R&D programs and patient support
    • Support Accelerating Treatments to Patients programs
    • Coordinate travel

Chapter Services

  • Maintain and update volunteer hours on constituent and event records.
  • Order and proof business card and name tags for volunteers.
  • Coordinate Chapter Services event insurance.
  • Assist with volunteer recognition initiatives.
  • Provide other support functions as needed.


  • Support the existing donor relations initiatives such as:
    • Initiate phone calls, letters and emails to donors with the primary goal of expressing appreciation for their support, and to further connect them to the mission
    • Utilize Raiser’s Edge donor software to document communication with donors and update their records
  • Help with prospect research
  • Help with mailings as needed
  • Perform other support functions as needed

General Office

  • Answer incoming calls; greet callers/visitors in a friendly and professional manner.  Seek to assist callers/visitors and serve as a referral bridge when necessary.
  • Distribute daily mail
  • Process outgoing shipments (UPS, FedEx, USPS, etc)
  • Process daily donations
  • Assist with ordering, receiving, stocking and distribution of office supplies

In addition to these specific duties and responsibilities, the administrative coordinator will perform other assignments related to these general areas and will assist members of other departments as needed.

Education/experience – Bachelor’s degree in business or related field preferred. 1 to 3 years of relevant experience and/or training or equivalent combination of education and experience.

Ability/skills – Demonstrated proficiency in Microsoft Word and Excel required. Familiarity with office equipment and inventory maintenance preferred. Knowledge of shipping and mailing procedures preferred. Able to work independently on assigned tasks as well as accept direction on given assignments. Ability to provide superior customer service to internal and external clients, to be detailed and accurate in work methods, and to exercise good judgment with professionalism.


We value our employees’ time and efforts. Our commitment to your success is enhanced by our competitive compensation (commensurate with experience) in addition to an extensive benefits package including:

  • Paid time off – 27 days
  • 11 Paid holidays
  • Medical, dental and vision benefits
  • 403(b) 7.5% of salary, no match required

We work to maintain the best possible environment for our employees, and strive to provide a collaborative, creative environment where each person feels encouraged to contribute to our processes, decisions, planning and culture.

To apply:

Qualified candidates are encouraged to forward their cover letter, resume and salary requirement to:, or fax your information to: 816.268.8497. Please reference “Administrative Coordinator” in the subject line.


Seasonal Database Assistant (Part-time, Non-exempt) $14 per hour

Supervisor: Database Administration Manager


20-40 hours per week – flexible schedule between 9 a.m. and 5 p.m. (Aug. 22, 2016 to Oct. 31, 2016)

Primary function:

Input incoming daily cash receipts, run daily revenue reports, process mailings and perform certain administrative duties. Candidate must have organizational skills, flexibility to work hours as needed, teamwork, written communication skills and an ability to work without supervision. Previous experience with working with Luminate Online and Raiser’s Edge preferred.

Key tasks:

  • Using Rasier’s Edge and Luminate Online to, add, clean and validate company and individual records, making sure that contact data is accurate and complete.
  • Enter daily revenues to the appropriate member account in database; this includes cash, checks, credit card an online donations.
  • Run daily reports from database system for separate types of gift revenues and balance with bank deposits.
  • Maintain files of all correspondence and donor gift information, organized by date.
  • Provide back up support for other database assistant duties as needed.
  • Other administrative and clerical duties as assigned.

Skills required for the job:

  • Strong attention to detail, accuracy, and dependability on repetitive tasks.
  • High level of typing accuracy and speed.
  • Ability to follow a schedule of work and meet set target.
  • Experience using databases and CRM systems, ideally Raiser’s Edge and Luminate Online.

Personal qualities:

  • Thorough worker with rigorous attention to detail and ability to understand the importance of the task.
  • Quick learner and willing to use own initiative.
  • Flexible approach to workload.
  • Reliable and trustworthy.

Education/experience – Two years data entry and/or secretarial experience with preference to those with bookkeeping experience. High school graduate or equivalent with experience in business, bookkeeping and word processing courses.

Physical demands – Must be able to sit or stand for extended periods of time, use hands and arms, read, stoop, crouch, talk, hear, see objects clearly at 20 inches or less, and lift and move items weighing up to 20 lbs.

The physical demands described here are representative of those that must be met by an employee to successfully perform the essential functions of this job. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions.

This job description is not intended to be all-inclusive; the employee may also be expected to perform related duties as assigned. This organization reserves the right to change job duties as the need arises. This job description does not constitute a written or implied contract of employment.

To apply:

Qualified candidates are encouraged to forward their resume to:, or fax your information to: 816.268.8497.  Please reference “Seasonal Database Assistant” in the subject line.