Facing Fatigue

I’m a go-getter. I like to soak in and accomplish as much as I can each day. My body does not always allow me to do what my mind wants or thinks it can do. When living with chronic health issues like PKD, fatigue can become a part of our lives. When both of my kidneys...

PKD Messenger

On PKD Awareness Day, Sept. 4, 2015, my family and I used window markers and excitedly decorated our car in a parking lot in Arizona. Our messages ranged from “PKD Awareness Day, PKD Patient Inside” to “PKD Will Not Beat Me.” As we adorned our car for the occasion,...

Why I Walk

I fondly remember being in my early 20s and sitting on my living room floor calling one person after another from a contact list the PKD Foundation gave me. I was calling PKD families in south central Pennsylvania, introducing myself and letting them know I was...

#PKDAwarenessDay

For many of us, we have to deal with PKD personally and also handle the emotions our loved ones endure because of the disease. My mom, at 59 years old, is the oldest to survive in our immediate family from PKD. All other family members on mom’s side of the family...