by admin | Nov 27, 2015 | PKD Will Not Beat Me
Valen’s husband, Noah, offers insight into what it’s like to be a caregiver to a PKD patient. I sat with my face in my hands as the fifth person tried to start an IV in Valen’s delicate veins. She was trembling vigorously, staring at the ceiling; her tired...
by admin | Nov 19, 2015 | PKD Will Not Beat Me
“Mom, my head hurts!” As a 5-year-old, I stood in the kitchen repeating those four words several times, each time louder, until I fell to the floor and had my first grand mal seizure. This is the day I became a patient and my parents became caregivers. Neither role is...
by admin | Nov 12, 2015 | PKD Will Not Beat Me, Research
On our PKD journey, patients and researchers search for many answers, all with the common goal of discovering a cure. We patients may search to find out why we have this disease, what we can do to lead the healthiest lives, where we can obtain the best care or when we...
