by admin | Mar 31, 2016 | PKD Will Not Beat Me
Today wraps up 31 Days of PKD Challenges. It has been fun to see the heightened PKD awareness being spread on social media the past couple of weeks. We should be proud of the difference we’ve made this month and strive to keep that momentum going. On this last day of...
by admin | Mar 26, 2016 | PKD Will Not Beat Me
We all have a story. Whether your PKD is a spontaneous mutation, hereditary, ADPKD, ARPKD or you are a caregiver to someone who has PKD, you have a story to tell. Some of us are more private than others or too sick to share, and that is OK. When I speak about my...
by admin | Mar 17, 2016 | Education, PKD Will Not Beat Me
I was in my early 20s when I first typed “PKD” in Google’s search engine. That was 12 years ago this month. I was so excited to discover the PKD Foundation. I immediately contacted the Chapter Relations Manager and shortly thereafter created the South Central PA...
by admin | Mar 11, 2016 | PKD Will Not Beat Me
I’ve been seeing nephrologists for 23 years since my diagnosis of PKD when I was 10 years old. The first time I met my pediatric nephrologist, I was told: PKD was one of the best diseases to have I would follow the same family history as those before me It wouldn’t...
by admin | Mar 3, 2016 | PKD Will Not Beat Me
It’s healing and inspiring when we take something that tried to knock us down and use what we’ve learned to lift others up. This was illustrated last Saturday at the PKD Foundation Sacramento Chapter’s first annual Corks for a Cure fundraising event. Last summer, six...
