To My Younger Self

I’ve learned a lot from living with PKD since the age of 10. PKD and the health issues I’ve endured have taught me all facets of strength, emotionally and physically. I believe what we go through in our youth has a large impact on our future. We learn and grow from...

Build Your Community

I think people would be surprised if they knew how many PKD patients live close to them. I spent a little over a decade after being diagnosed at age ten without ever knowing or crossing paths with anyone outside my family with the disease. The only reason that changed...

The Exceptions

When I was first diagnosed with PKD at ten years old, my nephrologist told my mom and me, “You will probably follow your same family history and not be affected until your late 40s to early 50s,” but my mom and I are the exception to this statement. Looking back at...