Bills of Importance to the PKD Community

Living Donor Protection Act of 2017 (H.R. 1270)

The Living Donor Protection Act is bipartisan legislation that protects the rights of living donors and removes barriers to organ donation. This bill was introduced in the House of Representatives by Congressman Jerrold Nadler (D-NY) and Congresswoman Jaime Herrera Beutler (R-WA).

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OPEN ACT (H.R. 1223 / S. 1509)
Orphan Product Extensions Now, Accelerating Cures & Treatments

The OPEN ACT passed the House in July 2015 but was not signed into law. The bill was reintroduced in the House of Representatives on Feb.  27, 2017, by Representatives Gus Bilirakis [R-FL 12], G.K. Butterfield [D-NC 1] and Mike McCaul [R-TX 10].  Senators Orrin Hatch [R-UT] and Robert Menendez [D-NJ] introduced S. 1509 in June. The OPEN ACT would provide an economic incentive to explore ways to bring more treatments for rare diseases, like ARPKD, to market through the process of repurposing drugs.

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Track Legislation

You can research current and past federal legislation.

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