by PKD Foundation Staff | Jun 18, 2018 | Staying Healthy
Have you ever used an app to help manage living with PKD? There’s an app for everything these days! Why not use an app to help make the best nutrition choices while shopping at the grocery store and track important information for disease management? Our Director of...
by PKD Foundation Staff | Jun 17, 2018 | Awareness, Family Life
Hello, and Happy Father’s Day to all the dads! My name is Ed McVey and my daughter Meredith has PKD. When I was asked to tell our story for this blog post, I realized how important it is to talk about the disease and raise awareness. My daughter was diagnosed with PKD...
by PKD Foundation Staff | Jun 14, 2018 | PKD Will Not Beat Me
I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their knowledge, skill and guidance. I look at the doctor/patient relationship...
by PKD Foundation Staff | Jun 8, 2018 | Positivity, Transplantation
In honor of today being Best Friends Day, we reached out to our friends Liz Casperite and Maria Weaver to learn more about how their transplant journey brought them closer together. Philadelphia Chapter Education Coordinator Liz has PKD and was listed for a kidney...
by PKD Foundation Staff | Jun 1, 2018 | Voices of PKD
My name is Robert Patrick Herman, proudly named after my mom and dad. I was brought into the world on Friday, August 13, literally in the middle of the Los Angeles riots of 1965. My mom always said it was a party for me that got out of hand! So it makes sense that if...
