by Sydney Johnston | Jan 18, 2022 | Awareness
Published on January 18, 2021 | Looking for a hands-on way that you can support PKD research? Fundraise Your Way allows you to take your passion and turn it into a PKD fundraiser. Whether it’s for just one day or all year long, there are countless options with...
by Sydney Johnston | Jan 11, 2022 | Education, Living with PKD
Published on January 11, 2021 | When you have PKD, your kidneys aren’t the only organs involved. Many people also have issues with their digestive systems. These are just a few links between PKD and common GI issues. Liver Cysts About 80% of people with PKD...
by Sydney Johnston | Dec 21, 2021 | Advocacy
BE Published on December 21, 2021 | Recently, we hosted our inaugural Advocacy Champions Network (ACN) Awards Ceremony. Together, we honored and celebrated PKD advocates who’ve dedicated significant time to improving the lives of people living with PKD....
by Sydney Johnston | Dec 14, 2021 | PKD Foundation News
Published on December 14, 2021 | Much like 2020, this year had its ups and downs. Challenges and celebrations. At the PKD Foundation, we worked to bring the PKD community the right resources, the right way, and the right time. From continuing our virtual events to...
by Sydney Johnston | Dec 7, 2021 | ARPKD, Family Life
Published on December 7, 2021 | Since Kari Lusby’s son, Honor, was diagnosed with PKD at age 4, she and her family have managed his disease by focusing on the main tenets of good health. Nutrition, hydration, movement, sleep, mindset, and mental toughness. As Honor...
