by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Sep 1, 2020 | Awareness, Knowledge
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more people learn about PKD, more people get involved. And that means more...
by Sydney Johnston | Aug 25, 2020 | Education, Research
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically active, and keeping up-to-date on the latest research and recommendations is...
by Sydney Johnston | Aug 18, 2020 | PKD Foundation News
Published August 18, 2020 | On August 20, 1982, Jared J. Grantham, M.D., and Joseph H. Bruening founded the PKD Foundation to find treatments and a cure for polycystic kidney disease (PKD). This original vision remains at the heart of the Foundation’s work today. As...
by Sydney Johnston | Aug 11, 2020 | Awareness, Run for PKD, Walk for PKD
Published August 11, 2020 | For 20 years, the Walk for PKD has been the nation’s largest gathering of the PKD community. Families, friends, and PKD supporters gather every year raising vital dollars for PKD research. But that’s not the only reason they walk. Last...
