by Sydney Johnston | Jul 7, 2020 | Awareness, Q and A, Walk for PKD
Published July 7, 2020 | Now in its 20th year, the Walk for PKD remains the nation’s largest gathering of the PKD community. As the PKDF’s signature fundraising and public awareness event, the Walk has raised an inspiring $33 million over two decades. But things...
by Sydney Johnston | Jun 23, 2020 | PKD Foundation News, Q and A, Staff Update
Published June 23, 2020 | Earlier this month, Chad Iseman joined the PKD Foundation as its new chief advancement officer. He’s no stranger to the world of kidney disease. A veteran fundraiser, he’s generated donations in support of kidney patients for 15...
by Sydney Johnston | Jun 16, 2020 | Awareness, DIY for PKD
Published June 16, 2020 | Even the simplest act can have a huge impact. While the ongoing pandemic has kept many indoors, Toni Stuart used this time at home to raise awareness of PKD. With the help of her family and her own two hands, she sewed cloth masks to benefit...
by Sydney Johnston | Jun 9, 2020 | Q and A, Research
Published June 9, 2020 Laurel Willig, M.D., Children’s Mercy How did you first get involved in PKD research? Laurel: I have had a strong interest in the genetics of pediatric renal disease since fellowship. When I started clinical practice, seeing PKD patients...
by Sydney Johnston | Jun 2, 2020 | Advocacy, Caregivers, Education
Published June 2, 2020 When a loved one is diagnosed with PKD, it’s important to learn how to be a PKD advocate. Glenna Frey knows exactly what that’s like. Living in Whitehouse, Ohio, Glenna and her husband, Bob, often drive two hours from their home to...
