by Sydney Johnston | Jun 28, 2022 | Research
Published on June 28, 2022 | Laura Onuchic, M.D., Yale School of Medicine How did you first get involved in PKD research? Laura Onuchic: The fight against PKD has been a part of my life for as long as I can remember. Both my parents are incredible medical...
by Sydney Johnston | Jun 21, 2022 | Awareness, Fundraise Your Way
Published on June 21, 2022 | A PKD patient, advocate, and PKDF volunteer, Glenn Frommer organized the RideForPKD to raise $500,000 for PKD research. On May 1, Glenn Frommer kicked off his journey across the country. And after nearly two months on the road, we’re...
by Sydney Johnston | Jun 14, 2022 | Education
Published on June 14, 2022 | With polycystic kidney disease, there is a 50% chance of passing the disease to children. Due to the high chance of passing PKD to future generations, many have questions about genetic testing. To better understand the role of genetic...
by Sydney Johnston | Jun 8, 2022 | Advocacy
Published on June 7, 2022 | In order to advocate for our community, we formed the Advocacy Champions Network (ACN). The ACN connects advocates to their local legislators, helping further PKD-centered legislation. Each member has their own unique path to advocacy....
by Sydney Johnston | May 31, 2022 | Education
Published on May 31, 2022 | In the early 2000s, the PKD Connect Conference originated as the PKD Foundation National Convention. This educational event brings together every part of the PKD community to provide information, research, tools, resources, and networking...
