Keep Updated March 2016

Washington summary March 2016

Stakeholders meet with federal representatives Rare disease advocates met from Feb. 29 to March 3 for the annual Rare Disease Week on Capitol Hill. Ordinary citizens, including kidney disease stakeholders, had the opportunity to learn about issues before Congress and […]

PKD Foundation |

Congressional update Feb. 2016

The first part of February has been important for the PKD community and other rare disease interests. Senate 21st Century Cures action begins In Jan., Sen. Lamar Alexander (R-TN), chairman of the HELP Committee, announced that the Committee would not […]

PKD Foundation |