Advocacy
Awareness
Education
Research
Funding the federal budget: What you need to know
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal Budget process and how it pertains to the PKD community and the PKD...
August Recess: Make your Voice Heard
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message...
ADPKD Registry: Making enrollment a Foundation priority
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
Understanding the “Advancing American Kidney Health” executive order
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health. This order and its accompanying policies mark one of few times a sitting president has brought chronic kidney disease —...
Looking at appropriations for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Funding
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn more about the approval of HR 2740 and what the bill means for PKD patients and their families. Q: What is HR 2740? Alexis: HR 2740 is a bill approved...
ADPKD Registry: putting power in the patient’s hands
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with Elise Hoover, Director of Research at the PKD Foundation (PKDF), to...
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As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of GovernmentRead More
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As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understandRead More
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The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understandRead More
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Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health.Read More
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This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn moreRead More
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Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal DominantRead More