PKD Connection Blog

On Friday, July 10, the 21st Century Cures Act (H.R.6) was passed by the House of Representatives by a vote of 344 to 77.  This legislation delivers hope to patients living with chronic illness by providing resources to researchers so […]

Advocacy defined means “the act or process of supporting a cause or proposal, the act or process of advocating something.” Sounds pretty simple, right? The reality is that when we talk about the PKD Foundation’s advocacy efforts and how patients, […]

In late October, I was invited by U.S. Representative Tim Murphy from Pennsylvania’s 18th Congressional District to attend his Pathway to 21st Century Cures roundtable discussion. 21st Century Cures is an initiative to move us faster toward cures and medical […]