PKD Connection Blog

Autosomal recessive polycystic kidney disease (ARPKD) is a rare genetic disorder affecting approximately one in 20,000 children. ARPKD affects both boys and girls alike and may cause death in the first month of life. Children who survive the newborn period […]

On this National Pregnancy and Infant Loss Remembrance Day, we take a moment to honor the babies and families who have suffered the unimaginable—the loss of a child. Sadly, this is the reality for thousands of people in the U.S. […]

Today is National Pregnancy and Infant Loss Remembrance Day, a day of observance in the U.S. when thousands commemorate an infant death or pregnancy loss. For Jen and Pete St. Aubin, the grieving process began the moment they heard the […]

When a child passes away, there are no words that can take away the pain of a parent’s loss. It is unimaginable to think of a child passing away. But, in many people’s lives this is their reality, especially in […]

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