PKD Connection Blog

In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Melissa Justice, a member of the PKD community, to hear her story […]

Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With the event just a few weeks away, we reached out to Kevin to learn more about his family’s experience with PKD […]

On this National Pregnancy and Infant Loss Remembrance Day, we take time to honor the babies and families who have suffered the unimaginable—the loss of a child. Sadly, this is the reality for thousands of people in the U.S. Thirty […]

Autosomal recessive polycystic kidney disease (ARPKD) is a rare genetic disorder affecting approximately one in 20,000 children. ARPKD affects both boys and girls alike and may cause death in the first month of life. Children who survive the newborn period […]