For this week of National Kidney Month, our challenge to you was to tell someone new! Spreading the word is an empowering thing you can do for the community, no matter how PKD affects you. To show this, we asked […]
We’re only a couple months out from the 2019 PKD in Children Conference, and if you’re a PKD parent, this is a can’t-miss event! Join us in Chicago from May 3 to 5 for an amazing opportunity to learn essential […]
This past week, 450 rare disease advocates and patients descended on Washington, D.C., for Rare Disease Week, and I was glad to be amongst them. It was a packed agenda with four days of activities and awareness opportunities and I’d […]
#GivingTuesday is right around the corner, and this year, we’re asking: what can you give? Can you give a donation? Our goal for #GivingTuedsay is to raise $18,000 — the amount needed to fund ten weeks of PKD research. When […]
Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! Registration filled up fast, but not before Memphis Chapter Coordinator, Karyn Waxman, reserved her spot. We reached out to Karyn to […]
Let’s raise the bar on PKD Awareness Day and come together as a united front to spread the word about this disease further than we ever have before. Join us on Tuesday, Sept. 4, as we spread the word. Here’s a […]
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, […]
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new […]
My name is Zseraldina Ferenczi and I am the Community Outreach Coordinator at the PKD Foundation. I am excited to tell you about an important new resource for anyone impacted by polycystic kidney disease (PKD). It’s a web portal called […]
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practices for managing blood pressure: “Blood pressure is a measurement of the force of the blood as it flows through the […]