#GivingTuesday is right around the corner, and this year, we’re asking: what can you give? Can you give a donation? Our goal for #GivingTuedsay is to raise $18,000 — the amount needed to fund ten weeks of PKD research. When […]
Our recent transplantation webinar with Melissa Blevins Bein, Executive Director of Transplant Programs at UC Davis Medical Center, was a hit! Registration filled up fast, but not before Memphis Chapter Coordinator, Karyn Waxman, reserved her spot. We reached out to Karyn to […]
Let’s raise the bar on PKD Awareness Day and come together as a united front to spread the word about this disease further than we ever have before. Join us on Tuesday, Sept. 4, as we spread the word. Here’s a […]
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, […]
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new […]
My name is Zseraldina Ferenczi and I am the Community Outreach Coordinator at the PKD Foundation. I am excited to tell you about an important new resource for anyone impacted by polycystic kidney disease (PKD). It’s a web portal called […]
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practices for managing blood pressure: “Blood pressure is a measurement of the force of the blood as it flows through the […]
The U.S. Food and Drug Administration (FDA) has updated the requirements for the Nutrition Facts label. These changes are based on new data about what constitutes a healthy diet—something all PKD patients know about. In recent years, Americans have become […]
We’re ending on a high note as Donate Life Month draws to a close: our very own Senior Director of Community Fundraising, Sue Full, has been approved as a transplant match for best friend and Director of Community Engagement, Nicole […]
At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard of story came to us from our Orlando Chapter Education Coordinator Brittnee Boyd, and we reached out her […]