We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD and older ARPKD patients who are interested in learning specific information about their disease. We recently reached out to Michele Karl, […]
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD Connect Peer Mentor Program. This new […]
My name is Zseraldina Ferenczi and I am the Community Outreach Coordinator at the PKD Foundation. I am excited to tell you about an important new resource for anyone impacted by polycystic kidney disease (PKD). It’s a web portal called […]
Our Director of Community Engagement and PKD patient, Nicole Harr, weighs in with her experience with hypertension and best practices for managing blood pressure: “Blood pressure is a measurement of the force of the blood as it flows through the […]
The U.S. Food and Drug Administration (FDA) has updated the requirements for the Nutrition Facts label. These changes are based on new data about what constitutes a healthy diet—something all PKD patients know about. In recent years, Americans have become […]
We’re ending on a high note as Donate Life Month draws to a close: our very own Senior Director of Community Fundraising, Sue Full, has been approved as a transplant match for best friend and Director of Community Engagement, Nicole […]
At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard of story came to us from our Orlando Chapter Education Coordinator Brittnee Boyd, and we reached out her […]
At the PKD Foundation, we honor various and unique patient perspectives to show the broad scope of experience that PKD patients face with this disease. This includes the reality of dialysis, which can go undiscussed in our community in comparison […]
May’s Webinar Wednesday saw our friend and Scientific Advisory Committee Chair Terry Watnick, M.D., open the floor to questions from PKD patients. For a quick recap, here some of the highlights from the Q&A with Dr. Watnick: Q: What can […]
On March 25, 2017, PKD community members all over the country joined their local Chapters to participate in our exclusive, online education conference, “What’s New in PKD: A Day of Learning.” This year’s event featured PKD experts from Mayo Clinic […]