Published October 15, 2019 Today is National Pregnancy and Infant Loss Remembrance Day. This is a day of support, awareness, and education in honor of those who have suffered a miscarriage, ectopic pregnancy, still birth, or loss of an infant. […]
Published October 10, 2019 Written by Sue Full, Senior Director of Community Fundraising What is a matching gift? A matching gift is a charitable donation your company gives on your behalf. It is based on donations and, in some cases, […]
Published October 8, 2019 Written by Nicole Harr, Director of Community Engagement Do you ever feel like your gas tank is just plain empty? While it may be easy to fill up your car at the gas station, when your […]
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD Patient Registry. Over the past few years, the PKD Foundation has collaborated with PKD […]
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal Budget process and how it pertains to the PKD […]
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. […]
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The […]
In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with Elise Hoover, Director of Research at the PKD Foundation (PKDF), to learn more about […]
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on managing a child’s health when they live with […]
PKD patients are very well-informed about their disease and its consequences. As a disease impacting multiple generations or appearing unexpectedly as a spontaneous mutation, patients and their families witness first-hand the progression of the disease individually and from generation-to-generation. They […]