PKD Connection Blog

“Wow—so much to do—don’t get bogged down with the burden of disease. Try to keep your composure and quality of life.” This was the start of a message I recently received from my nephrologist. This great advice, while sometimes easier […]

Giving back has been a very important part of my journey since 2004 when I first learned of the PKD Foundation. I founded a local Chapter in Pennsylvania and shared my story in front of an audience for the first […]

Sickness never comes at the right time. When living with chronic health issues, it’s likely that we’ll miss out on important things in our lives. We need to be ok with the fact that things we’re looking forward to – […]

There are certain days in our lives that will never be forgotten, either by choice or because the significance of them are burned into our memories. For me, Oct. 12 was one of those days. I was at California Pacific […]

I firmly believe the power of positivity is why I am still alive and how I’m able to endure and move forward with all of my chronic health issues. Our minds can have significant control over our thoughts and actions, […]

There are experiences and tragedies which we endure and can’t ever forget, but I believe it is important to find the strength to keep moving forward. Putting one foot in front of the other can unfold differently for different people, […]

Our diet and how we approach nutrition changes as we age, especially as a PKD patient. When we’re younger, we are either too busy playing to worry about food or aren’t focused on the importance of what we put into […]