Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Looking at appropriations for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Funding
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn more about the approval of HR 2740 and what the bill means for PKD patients and...
Participating in research – why PKD patient registries are important
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive Polycystic Kidney Disease Database and why it’s important to the...
Memphis Chapter Coordinator shares kidney transplant experience
Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinator for the past 19 years. Her passion lies in heightening PKD awareness...
ADPKD Registry: putting power in the patient’s hands
Published June 4, 2019 In May we announced the upcoming ADPKD Patient Registry, a collection of individuals with Autosomal Dominant Polycystic Kidney Disease (ADPKD). This month, we sat down with...
PKD in Children conference: parents building a support network
On May 3–5, parents of children with ARPKD and ADPKD gathered in Chicago, Illinois, for the PKD in Children conference. The event is a destination for parents to receive essential information on...
Atlanta Walk for PKD – October 12, 2019
Sign up today for the 2019 Atlanta Walk for PKD and be a part of the largest gathering of PKD patients, friends and family in your community. 100% of each donation funds life-saving research and...
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The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understandRead More -
Last Wednesday, Director of Government Affairs Alexis Denny attended the signing of an executive order titled Advancing American Kidney Health.Read More -
Mark your calendars, because the first fall Walk for PKD event is just two months away. This year, 54 WalkRead More -
This month, we sat down with Alexis Denny, Director of Governmental Affairs at the PKD Foundation (PKDF), to learn moreRead More -
Published June 18, 2019 We spoke with Lisa M Guay-Woodford, MD, Children’s National Health System, about the Autosomal Recessive PolycysticRead More
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Diagnosed with PKD nearly 20 years ago, Karyn Waxman helped establish the Memphis Chapter and has acted as its coordinatorRead More
