Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
How we reached the first ADPKD treatment
In light of our exciting news about tolvaptan receiving FDA approval as the first ADPKD treatment, we reached out to Benjamin Cowley Jr., M.D. to explain how we reached this amazing milestone....
Breaking news: FDA approves first treatment for ADPKD
Today is a historic day in providing hope to patients with polycystic kidney disease. We are excited to announce that the U.S. Food and Drug Administration (FDA) granted approval of JYNARQUE™...
Liver transplant evaluation, part 2
“I’d like to talk to you in person next month about a transplant.” I heard these words from my primary sclerosing cholangitis (PSC) specialist over the phone in December when I was hospitalized...
Five things to know about preparing for transplant
When managing a chronic disease, like PKD, it is important to be your own best advocate. When preparing for a kidney transplant, being your own best advocate is critical to ensure your best...
Top five reasons to attend the 2018 PKD Connect Conference
Summer is coming up faster than you know, and along with it, the 2018 PKD Connect Conference! Formerly known as the PKD National Convention, PKD Connect Conference is our biennial conference that...
Chili Lime Shrimp from Cooking Well
Shrimp is always a delicious dish, but spicing it up with chili and lime turns it into the perfect entrée with a little zest and a lot of flavor. Our Marketing Specialist, Tierra Hogan, tried out...
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Cinco De Mayo is tomorrow, and we have the perfect recipe that will help you get a little festive. OurRead More
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We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear herRead More
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We’re ending on a high note as Donate Life Month draws to a close: our very own Senior Director ofRead More
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In light of our exciting news about tolvaptan receiving FDA approval as the first ADPKD treatment, we reached out toRead More
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Today is a historic day in providing hope to patients with polycystic kidney disease. We are excited to announce thatRead More
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“I’d like to talk to you in person next month about a transplant.” I heard these words from my primaryRead More