Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
“The Call” and Kaley, Part II
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a...
PKD Connect Resource Center offers peer mentoring services
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder to lean on from someone who knows firsthand what you’re going through. Enter our PKD...
Fundraising tips for the fall Walk for PKD season
Our annual Walk for PKD is just around the corner! As our signature fundraising event, 100% of the funds you raise go to PKD research to help find treatments and a cure. Our Community Fundraising...
PKDF staff member Nicole Harr shares her reflection pre-transplant
Our own Nicole Harr, Director of Community Engagement, has spent the last two years sharing pieces of her journey as she’s prepared to receive a kidney transplant. Now, as the day of her surgery...
We’re all human
Sometimes the littlest thing at an unexpected time can trigger emotions that have been building up for a while. For me, it was a hospital food tray. On Dec. 2, 2017, I woke up severely ill with a...
And how was your day? Part 1
As many PKD patients know, PKD can often be accompanied by other ailments. Join guest blogger Rob Herman as he shares his and his family’s story about how PKD has impacted their lives: Though it...
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Kevin McDonald, captain of Team Lucy D, is ready to get moving in the Detroit Walk for PKD. With theRead More -
We’re excited to feature our new ARPKD Patient Handbook as a resource for both parents of children with ARPKD andRead More -
My name is Erin Burden and I live in Metro Atlanta with my husband, Christopher, and our three children. WeRead More -
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKDRead More -
If you, a family member or friend are impacted by PKD, sometimes you need advice, encouragement or a shoulder toRead More
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Our annual Walk for PKD is just around the corner! As our signature fundraising event, 100% of the funds youRead More