Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Father of a PKD patient celebrates Father’s Day by sharing his family’s story
Hello, and Happy Father’s Day to all the dads! My name is Ed McVey and my daughter Meredith has PKD. When I was asked to tell our story for this blog post, I realized how important it is to talk...
The doctor/patient team
I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctors since I was a child, though, I know I wouldn’t be alive today if it wasn’t for their...
Kidney donor and transplant recipient celebrate friendship on Best Friends Day
In honor of today being Best Friends Day, we reached out to our friends Liz Casperite and Maria Weaver to learn more about how their transplant journey brought them closer together. Philadelphia...
Atlanta Walk for PKD – Oct. 20, 2018
Walk with us at the Atlanta Walk for PKD in Downtown Duluth on Saturday, Oct. 20, and be a part of the largest gathering of PKD patients and supporters in your community. 100 percent of your...
Aneurysms: The silent destroyers, part 1
My name is Robert Patrick Herman, proudly named after my mom and dad. I was brought into the world on Friday, August 13, literally in the middle of the Los Angeles riots of 1965. My mom always...
Mother Daughter Q&A
Last week, my mom, Pam, faced her fear and flew alone for the first time, from Pennsylvania to California, to be with me for Mother’s Day. In celebration of her turning 62 this month and Mother’s...
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Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids wereRead More
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My parents live in Pennsylvania and my dad is currently visiting me in California. He is at our home helpingRead More
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Hello, and Happy Father’s Day to all the dads! My name is Ed McVey and my daughter Meredith has PKD.Read More
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I’ve met individuals who are stubborn when it comes to seeing a doctor. As someone who has been seeing doctorsRead More
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In honor of today being Best Friends Day, we reached out to our friends Liz Casperite and Maria Weaver toRead More