Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Tips to empower yourself as a great patient advocate
Being a patient takes work and dedication. Depending on our health status, it can feel like a part-time to full-time job. It is a constant learning process and important to find a balance between...
PKD Foundation appoints past Fellowship recipient Michal Mrug, M.D., new Scientific Advisory Panel Chair
Meet Michal Mrug, M.D., Chair of the PKD Foundation Scientific Advisory Panel (SAP). The Scientific Advisory Panel is comprised of 14 of the most prestigious physicians and scientists in the...
Navigating emotions
When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circle of support, who are most impacted by my health, are my husband, Noah, and my...
AR or AD? Young patient takes genetic testing to find her PKD type
At the PKD Foundation, we strive to give all types of patient experiences a voice in the community. Recently, an almost un-heard of story came to us from our Orlando Chapter Education Coordinator...
PKD patient shares experience with dialysis
At the PKD Foundation, we honor various and unique patient perspectives to show the broad scope of experience that PKD patients face with this disease. This includes the reality of dialysis,...
Top tips to spring clean your kidney diet
Between March being National Kidney Month, National Nutrition Month and the start of spring, there has never been a better time to get on the right track with your eating habits! Check out these...
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“It is going to be intense.” This is how my doctor described going through the liver transplant evaluation process. IRead More
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Polycystic liver disease (PLD) often goes hand in hand with PKD. We recently reached out to PKD community member andRead More
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Being a patient takes work and dedication. Depending on our health status, it can feel like a part-time to full-timeRead More
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Meet Michal Mrug, M.D., Chair of the PKD Foundation Scientific Advisory Panel (SAP). The Scientific Advisory Panel is comprised ofRead More
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When we endure health issues, we deal not only with our emotions, but also those of others. My immediate circleRead More