Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Our diet and how we approach nutrition changes as we age, especially as a PKD patient. When we’re younger, we are either too busy playing to worry about food or aren’t focused on the importance...
Communication within PKD families
I look at PKD as a family disease. For those of us who are not victims of a spontaneous mutation of PKD, it is likely that we are surrounded by numerous family members who are battling the same...
Life is coming up roses
I love when an idea unfolds organically, with serendipitous surprises along the way that lead one to believe it was all meant to be. This is what happened with my 15-year kidney transplant...
Tips for caring for yourself during hospital stays
One of the first things I love to do when I’m home for the night is put on my comfy clothes. There is something so nice about being cozy in your own home. Our homes are our safe places—with...
A couple weeks ago, on the evening of August 12, my husband Noah and I were sitting in beach chairs along the shore of Lake Tahoe. We were watching the sun set behind the Sierra Mountains with...
A letter from a transplant recipient to her donor
Dear Sally, Many of us only get one chance at life. A chance to grow up, dream big, find our purpose and fulfill it. Looking back, when I was a teenager, I did not have many dreams or plans for...
There are certain days in our lives that will never be forgotten, either by choice or because the significance ofRead More
I firmly believe the power of positivity is why I am still alive and how I’m able to endure andRead More
There are experiences and tragedies which we endure and can’t ever forget, but I believe it is important to findRead More
Our diet and how we approach nutrition changes as we age, especially as a PKD patient. When we’re younger, weRead More
I look at PKD as a family disease. For those of us who are not victims of a spontaneous mutationRead More
I love when an idea unfolds organically, with serendipitous surprises along the way that lead one to believe it wasRead More