Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
Renewed Hope
Hope re-energizes us, gives us something to look forward to, something to cling onto, something to believe in. When living with a chronic issue, there can be days when we feel there is no end in...
Our Calling
People fascinate me. We all have unique characteristics and bodies that make us look completely different from one another. Yet, we still yearn to look and be like others. I am intrigued by the...
The Cyst Bleed Saga
As time passed, the pain intensified in my lower back. I winced with pain at every imperfection in the road’s pavement. I was a teenager and my family and I were headed to Myrtle Beach, South...
Balancing The Unknowns
I didn’t have time to prepare and worry about my kidney transplant. Things happened quickly and my focus was surviving each individual day. My cysts would not stop bleeding and my football-sized...
Explore Transplant
We just finished Kidney Month, and today marks the beginning of Donate Life Month. For people with PKD, transplantation is never far from our thoughts, so I’m focusing today’s blog on this topic....
A Fond Farewell
When living with a genetic disease, such as PKD, we have seen and felt the effects of it throughout multiple generations. Quite often I hear others share stories of numerous family members they...
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Nobody likes a setback. I’ve learned that downtime gives us more time to think, which sometimes can be to ourRead More -
Nothing is coincidence. I believe we cross paths with people at just the right time in life and for theRead More
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I was not gifted with great health or an easy journey in life. However, when I was placed in theRead More
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Hope re-energizes us, gives us something to look forward to, something to cling onto, something to believe in. When livingRead More
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People fascinate me. We all have unique characteristics and bodies that make us look completely different from one another. Yet,Read More
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As time passed, the pain intensified in my lower back. I winced with pain at every imperfection in the road’sRead More
