Living with PKD During COVID-19
Published May 12, 2020 | In these unprecedented times, families across the globe are adapting their way of life to stay safe and healthy. Living with PKD during the COVID-19 pandemic can be even more challenging. Whether you're a transplant recipient, currently on...
About
The PKD Foundation Blog is contributed to by PKD Foundation staff and members of our incredible community. Focused on bringing you important PKD and Foundation updates, our blogs cover advocacy initiatives; awareness events; education for patients, caregivers, and health care professionals; and updates from and for our researchers.
Advocacy
Awareness
Education
Research
The Tides of Life
As the tide washed in, the Dutch Tulip Man faced the ocean: “Conjoiner rejoinder poisoner concealer revelator. Look at it, rising up and rising down, taking everything with it.” “What’s that?” I...
Happy 12th Birthday Precious ‘Bean’
Some people are scared of the unknown and don’t give it a chance to see how beautiful it can be. My grandmother and aunt, who passed away due to PKD, did not want a kidney transplant. My mom and...
Helpless vs. Burden
I strongly connected with the story of a butterfly cocoon that was shared in Robin Roberts’ memoir, ‘Everybody’s Got Something.’ “Someone sees the movement of the butterfly pressing against the...
You’re Worth It
Our neighbor is an avid cyclist and has completed a 100-mile run. I asked him if he has ever woken up on the morning of an endurance event feeling tired, as our energy level can vary from day to...
Thank You a Hundred Times
In the two years I have been writing this weekly blog, I’ve written it in many places, from an airplane to a hospital bed. As an old soul and deep thinker, I have shared personal thoughts,...
Medical Athlete
My husband and I live in Auburn, CA, known as "The Endurance Capital of the World.” The Auburn State Recreation Area is within walking distance from our home. This breathtaking park has more...
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“In the 15 years I have been a therapeutic massage therapist, you are my first client who has not complainedRead More
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“You woke up. You got out of bed. You got dressed. These may seem like small things. But when you’reRead More
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As the tide washed in, the Dutch Tulip Man faced the ocean: “Conjoiner rejoinder poisoner concealer revelator. Look at it,Read More
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Some people are scared of the unknown and don’t give it a chance to see how beautiful it can be.Read More
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I strongly connected with the story of a butterfly cocoon that was shared in Robin Roberts’ memoir, ‘Everybody’s Got Something.’Read More