PKD Connection Blog

Advocacy

PKDF Director of Government Affairs gives a sneak peek at 2019 Advocacy plan

Alexis Denny, Director of Government Affairs

Washington, D.C.

I’m excited to dig into the PKD Foundation’s 2019 legislative plan with the 116th Congress, sworn in this January. A historically young and energized group, many of them truly care about issues that are important to the PKD community. I will be working to leverage their momentum to focus on a number of top legislative priorities for the year. Read on to learn about a few of these priorities:

PKD research funding

Health Care and Insurance

There has been so much in the news lately about Medicare for All, Affordable Care Act reform and preserving or eliminating protections for people with preexisting conditions, it’s hard to keep track. The PKD Foundation is monitoring situations regarding health insurance closely and is making sure the needs and experiences of PKD patients are known in Washington, D.C.

Stay tuned as this debate continues and know that the Foundation is focused on what is best for you. The PKD Foundation is nonpartisan and has friends on both sides of the aisle who want to make sure you have timely and affordable access to the care and medication you need to live the healthiest life possible!

Alexis with a staffer of Congresswoman Debbie Wasserman Schultz, PKDF CEO Andy Betts, advocate Mike Haggard, and Hill contact Karen Thurman

The Year Ahead

2019 is already shaping up to be a busy year, with engagement happening both in D.C. and in state and district offices. I will be keeping you updated every step of the way, and will look to all of you to raise your voice at critical times throughout the year. Together we will work to raise awareness, secure funding for research and fight for a brighter, healthier future for everyone impacted by PKD.

To keep up to date with the latest news from the Hill, sign up for advocacy alerts today!

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