Advocacy
Awareness
Education
Research
ADPKD Patient Registry Celebrates Anniversary
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
Understanding PKD Pain and Daily Life
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically active, and keeping up-to-date on the latest research and recommendations...
Researcher Spotlight: Taka Saigusa, M.D.
Published August 4, 2020 Taka Saigusa, M.D., University of Alabama at Birmingham How did you first get involved in PKD research? Taka: I worked as a clinician in Japan for quite some time before I got involved in research. My first exposure to PKD research...
PKD Patients Join Research Grant Selection Panel
Published July 28, 2020 | Funding research is a primary function of the PKD Foundation. Each year, a research grant review panel combs through applications to determine which PKD-focused projects will receive funding. For the first time, PKD patients and caregivers...
Researcher Spotlight: Rebecca Walker, Ph.D.
Published July 14, 2020 Rebecca Walker, Ph.D., University of Maryland How did you first get involved in PKD research? Rebecca: I did my doctorate in Dr. Dominic Norris’ lab in Oxford, UK. His lab focuses on “cilia in development and disease,” and had recently...
Researcher Spotlight: Laurel Willig, M.D.
Published June 9, 2020 Laurel Willig, M.D., Children's Mercy How did you first get involved in PKD research? Laurel: I have had a strong interest in the genetics of pediatric renal disease since fellowship. When I started clinical practice, seeing PKD patients was...
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Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was toRead More
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Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancingRead More
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Published August 4, 2020 Taka Saigusa, M.D., University of Alabama at Birmingham How did you first get involved inRead More
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Published July 28, 2020 | Funding research is a primary function of the PKD Foundation. Each year, a research grantRead More
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Published July 14, 2020 Rebecca Walker, Ph.D., University of Maryland How did you first get involved in PKD research? Rebecca:Read More
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Published June 9, 2020 Laurel Willig, M.D., Children’s Mercy How did you first get involved in PKD research? Laurel: IRead More