by PKD Foundation Staff | Jan 17, 2019 | Advocacy, Voices of PKD
My name is Jim Myers. I have been fighting PKD/kidney disease for nearly 40 years. I currently live in Hammond, Ind. My mother and father ran a couple of grocery stores in my hometown, Cedar Lake, Ind. My dad was afflicted with polycystic kidney disease. On his side...
by PKD Foundation Staff | Dec 19, 2018 | Advocacy
Our Director of Government Affairs, Alexis Denny, recently provided the following memo on a federal district court judge’s decision in the case of Texas vs US regarding the Affordable Care Act (ACA): On December 14, 2018, a federal district court judge struck...
by admin | May 1, 2018 | ADPKD, Advocacy
We reached out to Honorable Karen Thurman, a former member of the U. S. House of Representatives, to hear her journey on dealing with PKD in her family. Karen also shares her thoughts on the news of the first ADPKD treatment and how tolvaptan will impact the PKD...
