by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Sep 1, 2020 | Awareness, Knowledge
Published September 1, 2020 | On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more people learn about PKD, more people get involved. And that means more...
by Sydney Johnston | Aug 11, 2020 | Awareness, Run for PKD, Walk for PKD
Published August 11, 2020 | For 20 years, the Walk for PKD has been the nation’s largest gathering of the PKD community. Families, friends, and PKD supporters gather every year raising vital dollars for PKD research. But that’s not the only reason they walk. Last...
by Sydney Johnston | Jul 7, 2020 | Awareness, Q and A, Walk for PKD
Published July 7, 2020 | Now in its 20th year, the Walk for PKD remains the nation’s largest gathering of the PKD community. As the PKDF’s signature fundraising and public awareness event, the Walk has raised an inspiring $33 million over two decades. But things...
by Sydney Johnston | Jun 16, 2020 | Awareness, DIY for PKD
Published June 16, 2020 | Even the simplest act can have a huge impact. While the ongoing pandemic has kept many indoors, Toni Stuart used this time at home to raise awareness of PKD. With the help of her family and her own two hands, she sewed cloth masks to benefit...
by Sydney Johnston | May 19, 2020 | Awareness, PKD Foundation News
Published May 14, 2020 The last few months were challenging for all of us in the PKD community. Many feel a deep uncertainty. And while the best advice for most of us is to stay home and sit this out, we all know PKD doesn’t stop, take a break, or slow down. Neither...
