by PKD Foundation Staff | Oct 11, 2019 | Awareness, Education
Published October 10, 2019 Written by Sue Full, Senior Director of Community Fundraising What is a matching gift? A matching gift is a charitable donation your company gives on your behalf. It is based on donations and, in some cases, volunteer hours you’ve provided...
by PKD Foundation Staff | Oct 8, 2019 | Education, PKD Connect, Staying Healthy
Published October 8, 2019 Written by Nicole Harr, Director of Community Engagement Do you ever feel like your gas tank is just plain empty? While it may be easy to fill up your car at the gas station, when your personal tank is empty it is time to think about taking...
by PKD Foundation Staff | Sep 4, 2019 | ADPKD, ADPKD Registry, Awareness, Education, Research
Today is an exciting day! Because today — in addition to being PKD Awareness Day — marks the launch of the nation’s first dedicated ADPKD patient registry. Over the past few years, the PKD Foundation has collaborated with PKD researchers, clinicians, patients,...
by PKD Foundation Staff | Aug 13, 2019 | Advocacy, Awareness, Education
As lawmakers get ready to return from the August recess, PKD Foundation sat down with Alexis Denny, Director of Government Affairs, to learn more about the intricacies of the general Federal Budget process and how it pertains to the PKD community and the PKD...
by PKD Foundation Staff | Aug 2, 2019 | Advocacy, Awareness, Education
As the only organization in the U.S. solely dedicated to finding new treatments and a cure for PKD, we understand how important it is to increase awareness of the disease and showcase its impact on patients, their families, and caregivers. Sharing the PKD message is...
by PKD Foundation Staff | Jul 23, 2019 | ADPKD Registry, Advocacy, Awareness, Education
The PKD Foundation prides itself on being an accessible resource for PKD patients, families and caregivers. But we also understand the need to provide practical ways for PKD patients to play a proactive role for themselves and future generations. The upcoming ADPKD...
