Choices

Life is full of choices and decisions. Life leads us down many different paths. Some turns we have full control over. Others we are swept up by a strong unwanted gust of wind and dropped right in the middle of unknown territory. PKD can force us to make big decisions...

Family Tree of PKD

I believe it is normal for children and teenagers to be self-consumed. They are growing, learning and finding their way in life. When they come home from school, they tell their parents about their day. I don’t recall asking my parents about their day! When I was...

Speak Up

It is guaranteed that I will get blood work done at least once every month for the rest of my life. I have spider veins. They are tiny, they roll and have lots of scar tissue. I am far from an easy stick and am particular with the phlebotomist that I allow to draw my...

Not A Victim

“I think it actually takes a lot of guts for us to come to terms with this that we are not super heroines and it is not about limitations, but preservation to what we have here and now and going into the future.” This powerful statement came from my dear friend...

The Tightrope of Life

Life is a constant balancing act as we walk on our individual tightropes. Some days are smooth sailing and we glide across with such grace. Other days we find ourselves swaying back and forth as we continue to put one foot in front of the other. Then there are days we...

A Face to Kidney Disease

When you think of PKD, what do you picture in your mind? Is it the image with a normal-sized kidney in comparison to the football-sized PKD kidney polluted with cysts? Is it the unknown of what your future may hold for you while living with this disease? Or is it the...