by admin | Mar 7, 2013 | Knowledge, PKD Will Not Beat Me, Positivity
“By a show of hands, how many people know what PKD (polycystic kidney disease) is?” This is how I begin most of my speeches. I have asked that question at over 80 events. I continue to be amazed as I scan the room and so few hands are raised. This shows me how vital...
by admin | Oct 25, 2012 | Knowledge, PKD Will Not Beat Me
It was several years after my transplant as I sat in a lecture at Johns Hopkins University School of Medicine with a room full of med students. I looked up at the overhead projector and saw the MRI of my kidneys before they were removed. My nephrologist, Dr. Watnick,...
by admin | Oct 4, 2012 | Knowledge, PKD Will Not Beat Me
I have a history of being quite judgmental when it comes to my doctors. It’s pretty cut and dry. I like them or I don’t. My health is in their hands. I won’t settle for anything but the best. The first day I met my current nephrologist, Dr. Bhat, I was impressed like...
by admin | Aug 30, 2012 | Knowledge, PKD Will Not Beat Me
Organization helps me stay positive. Especially when it comes to organizing all my medicine. I don’t prepare for a trip like a normal person, say someone with two kidneys. This past weekend I had an assembly line party of pill packing and the party consisted of my...
by admin | Jul 26, 2012 | Knowledge, PKD Will Not Beat Me
Knowledge, the “K” in my PKD! Rather than fear, try and understand! This is what I live by. When first learning of PKD, or after living with it for almost 20 years, like myself, it can seem scary. I have learned that the more knowledge I have gained, the more...
by admin | Jul 5, 2012 | Knowledge, PKD Will Not Beat Me
At the end of every PKD Educational Seminar I have attended, there was always one question that broke my heart. A mother or father would raise a hand and say: “I am afraid, for health insurance reasons, to get my child tested to determine if they have PKD.” I would...
