by Sydney Johnston | Feb 23, 2021 | ADPKD, Research
Published on February 23, 2021 Venkata Vivek Reddy Palicharla, Ph.D., University of Texas Southwestern Medical Center How did you first get involved in PKD research? Vivek: I started my postdoc career with an interest in understanding the role of primary cilium...
by Sydney Johnston | Jan 26, 2021 | ADPKD Registry, Research
Published on January 26, 2021 | Staff at the PKD Foundation know that without patient stories, we couldn’t understand what it’s like to live with PKD. We’re always leaning on patient perspectives: when we talk with researchers about new studies, when...
by Sydney Johnston | Jan 12, 2021 | ADPKD, Research
Published January 12, 2021 Sorin Fedeles, M.S., Ph.D., Yale University How did you first get involved in PKD research? Sorin: When I first came to Yale, my main goal was to undertake biomedical research studies rooted in asking the right questions and pursuing the...
by Sydney Johnston | Dec 17, 2020 | Education, Knowledge, Research
Published December 17, 2020 | While distribution of the Pfizer COVID-19 vaccine across the country has begun, many in the PKD community have questions about the COVID-19 vaccine. Chris Rusconi, Ph.D., chief research officer at the PKD Foundation, sits down with...
by Sydney Johnston | Sep 8, 2020 | ADPKD Registry, Awareness, Research
Published September 8, 2020 | When the PKDF launched the ADPKD Patient Registry a year ago, our goal was to build a network of ADPKD patients from whom we could learn about their experience with the disease in a standardized format. We wanted to make research more...
by Sydney Johnston | Aug 25, 2020 | Education, Research
Published August 25, 2020 | When it comes to living with PKD, maintaining a high quality of life while balancing PKD pain can be challenging. Having a well-balanced diet, staying physically active, and keeping up-to-date on the latest research and recommendations is...
