by PKD Foundation Staff | Oct 19, 2018 | ARPKD, Voices of PKD
In honor of October being Pregnancy and Infant Loss Remembrance Month, we want to recognize families who have lost loved ones to PKD. We recently reached out to Marquila Turner, a member of the North Texas Chapter, to hear her story and honor the lives of her sons: On...
by admin | Aug 10, 2018 | Voices of PKD
After being placed on the waitlist, receiving the call for a kidney transplant is a happy occasion for many PKD patients. The chance that PKD, with its genetic nature, might not end with a transplant can lead a family down the path all over again. Join guest blogger...
by PKD Foundation Staff | Jul 23, 2018 | Voices of PKD
As many PKD patients know, PKD can often be accompanied by other ailments. Join guest blogger Rob Herman as he shares his and his family’s story about how PKD has impacted their lives: Though it has yet to be officially determined by experts, I have to wonder if...
by PKD Foundation Staff | Jun 26, 2018 | Voices of PKD
Following my mother’s episode and subsequent diagnosis as a “vegetable,” life was continuing in the Herman household. We kids were no longer kids. I was 13 and wanting my own life, like any know-it-all teenager. My mom was getting “better,” but also more...
by PKD Foundation Staff | Jun 1, 2018 | Voices of PKD
My name is Robert Patrick Herman, proudly named after my mom and dad. I was brought into the world on Friday, August 13, literally in the middle of the Los Angeles riots of 1965. My mom always said it was a party for me that got out of hand! So it makes sense that if...
by PKD Foundation Staff | Feb 28, 2018 | ARPKD, Voices of PKD
Published on February 28, 2018 | Today, on Rare Disease Day, we give voice to millions of people worldwide living with rare diseases through education and advocacy. Autosomal recessive polycystic kidney disease (ARPKD), a rare form of PKD, affects 1 in 25,000...
