Welcome to the Parents Chapter!

About us

Outstanding Patient Support 2016The PKD Parents Chapter, led by volunteers Julia Roberts and Michele Karl, has served more than 500 families since 2000. Once a family with a child living with PKD reaches out to the PKD Foundation, a volunteer from the PKD Parents Chapter contacts them for support, compassion and guidance. Families can be connected with experts and other local families, and are supported in many ways through the Chapter. Parents of children with ARPKD or ADPKD should email pkdparents@pkdcure.org to connect with the PKD Parents Chapter.

Tell us about your family

Chapter updates

Posted 08/08/2017

Winner of the 2016 Outstanding Patient Support Award

PKD Parents Chapter works tirelessly to support families across the U.S. and around the world. Parents can count on our volunteers to offer support and guidance as their young children receive a PKD diagnosis or are struggling to find answers […]

Posted 06/08/2016

PKD Parents memorial quilt

The PKD Parents Chapter started an initiative in 2014 to recognize and honor the memory of all children lost to PKD by creating a memorial quilt.

Chapter members

Alexi
Kim
Staci
Aaron
Meg
Patricia