Welcome to the St. Louis Chapter!

About us

With the help of our Chapters in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD. Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.


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Chapter updates

Posted 09/25/2019

St. Louis Walk for PKD – October 13, 2019

Sign up today for the 2019 St. Louis Walk for PKD and be a part of the largest gathering of PKD patients, friends and family in your community. 100% of each donation funds life-saving research and helps us make great […]

Posted 09/23/2019

St. Louis Chapter Education Meeting – Monday, November 11, 2019

This meeting is canceled tonight due to the weather conditions! This meeting with guest speaker, Dr. Seth Goldberg from Washington University Hospital will be rescheduled.   Monday, November 11, 2019 7 to 9 p.m. Owen Ridge Campus – Exegy, Inc. […]

Posted 08/14/2019

St. Louis Chapter Walk Planning & Training Meeting – Monday, September 16, 2019

Join the St. Louis Chapter for a walk planning and training meeting! Volunteer Coordinator, Jean, will share details of the upcoming Walk for PKD event. Training will be provided to the volunteers who will be assisting with registration. We look forward […]

Posted 07/09/2019

St. Louis Chapter Education Meeting – Monday, August 12, 2019

Join the St. Louis Chapter for an education meeting! Do you or someone you love struggle with anxiety and depression? Join Dr. Robin Parks, MD, a psychiatrist in Creve Coeur, Missouri, as she shares information and coping strategies. Please bring […]