Education and support

Best practices

Due to continued concerns regarding COVID-19, we ask that our Chapters continue to postpone in-person gatherings until further notice. Staff remain available to assist with virtual options. If you are interested in hosting a virtual meeting, please contact your staff lead.

We are here to help, call or email anytime!


Education in your Chapter may take on many forms from providing resources to your Chapter members to planning an education meeting. The priority is to provide resources to members of your local PKD community. If you need help finding a resource for a Chapter member, please contact your staff lead. We are here to help!

If you are interested in planning an education opportunity for your Chapter, please contact your staff lead or submit your  event form.


Support may look different in each Chapter and may be as simple as ensuring that you respond to constituents that contact you via the Chapter email account to providing regular opportunities for Chapter members to gather together in support of each other.

  • Support Meetings – Support meetings provide opportunity for patients to meet regularly and share common concerns and issues.

If you are interested in planning an opportunity for your local community to gather in support of each other, please submit an event form.

Page last updated June 2021

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