PKD Connect Ambassadors

A community meeting is an opportunity for local patients and families to gather in support of each other and to learn valuable information to help them manage living with PKD.   

Community meetings can include activities such as:    

• Review and discussion of an existing PKD Foundation patient education resource, such as a webinar recording. Check out our resource library to view all patient resources.  
• Gathering to support one another, share individual experiences and share PKD Foundation resources to help manage PKD.  
• Invite a local expert to present a topic that complements PKD Foundation patient education. 

 Are you ready to plan a community meeting? Complete our event submission form. And a member of the Community Engagement team will follow up with next steps.  

Are you a new PKD Connect Ambassador or do you need a refresher? If so, this is for you. Check out the training sessions below and let me know if you have any questions! Email Nicole at nicoleh@pkdcure.org.

Welcome to PKDF! – Information for PKD Foundation Volunteers

• Welcome to PKDF! (slides)
• Please submit volunteer hours for participating in this training session

Communication Tools Training

• Communication Tools – Office 365 Recording
• Communication Tools _ Office 365 Slides
• Please submit volunteer hours for participating in this training session.

Communication Tools Training

• Communication Tools – Office 365 Recording
• Communication Tools _ Office 365 Slides
• Please submit volunteer hours for participating in this training session.

• Communication Tools – Microsoft Teams Recording
• Communication Tools – Microsoft Teams Slides
• Please submit volunteer hours for participating in this training session.

Leading a PKD Community

Let’s Get Started | Slides

Please submit volunteer hours for participating in this training session.

Community Meeting Process Recording | Slides

Sometimes it’s just hard to remember how to login to all the places you need to be. Let’s Login Quick Video series can help.

Let’s Login -Office 365 

• Where is my volunteer email account and how do I login?

Let’s Login – One Drive 

• What is One Drive and how do I get to it?

Let’s Login – Microsoft Teams 

• How do I login to Teams?
• How do I start a Teams meeting?

Need help accessing something else? Let us know!

Community Meetings

 After each Community Meeting, the PKD Connect Ambassador will receive a unique link to submit volunteer hours associated with planning that meeting.Please complete the form by clicking on the link provided and then, you can delete this link. You will receive a new link for each Community Meeting. 

Miscellaneous

If you have volunteer hours that are not associated with a community meeting or activity, please use this link. Examples: posting on social media, email communications, etc.

Centers of Excellence Outreach

Did you reach out to clinics in your area about our COE program? Please use this link to submit volunteer hours for COE Outreach.

If you have questions about this process, please contact your PKDF staff lead or email Nicole at nicoleh@pkdcure.org.