Building a Future

and finding a cure

Change happens

Generous donations from community members have led to enormous strides

Since our founding in 1982, we have invested more than $40 million in research and scientific studies toward our mission of discovering treatments and a cure. This has led to new discoveries that enable researchers to investigate possible treatments. We are also the go-to resource for support and education on living with PKD and dialysis and transplant alternatives. Patients and their loved ones turn to us when they have questions and are able to get answers, at no cost to them, thanks to your generous support. Our available resources include webinars, videos, convention and conferences, online communities and more.

36%Research24%Education & Support17%Awareness & Advocacy23%Administrative & Fundraising77 ¢of every dollar goes to research, education, advocacy, support or awareness.

77¢ of every donated dollar goes directly to research, education, advocacy, support and awareness.

View our annual report to see more of what we’ve accomplished together and how your money was invested.


As the largest private funder of PKD research, we are devoted to supporting PKD science that will lead us to treatments and a cure. Gifts from donors like you make this critical work possible.

Education & Support

We strive to be the leading authority when it comes to education and support for patients. From feet on the ground with our local Chapters to an online source of the latest news from PKD experts, patients and their loved ones turn to us when they have questions.

Awareness & Advocacy

The more people that know about PKD, the closer we get to treatments and a cure. We are dedicated to creating awareness about PKD and providing resources to advocate locally and nationally.

Other ways to give

We understand if you can’t donate the traditional way. Here are a few examples of other ways you can join us in the fight to end PKD.


Here’s a few examples:

Appreciated stocks and bonds

Donating appreciated securities, including stocks and bonds, is an easy and tax-efficient way to make a gift to help us end PKD.

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For Brock Nelson, it's all about increasing his ability to donate to a cause he is passionate about.

Workplace giving

Giving through your workplace provides a convenient way to support our work.

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Janice Wightman supports the PKD Foundation through payroll deduction.

In lieu of wedding gifts

Make your special day even more meaningful by turning it into a way to support the PKD Foundation.

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Estate gift planning

Ensure that your plans reflect your wishes for you and your family – including that of a world without PKD.

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Laverne was determined to change the legacy of future generations of others suffering from PKD.

Matching gifts

If your employer offers a matching gift program, you could double or even triple your gift.

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Through the matching gifts program, John Tuohy was able to raise more than $7,500 for the PKD Foundation.

Vehicle donation

With just one phone call, you can turn your old vehicle into hope for treatments and a cure to end PKD.

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Bev Benson donated her vehicle to support her family.

Foundation Partners

We are extremely grateful for our leadership donors who have made a transformational impact on our work.

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Dustin Williams and Bailey Jackson became Foundation Partners after attending the PKD National Convention.


What if you could make a difference with your online shopping? AmazonSmile helps you do just that.

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make a difference?