Northeast Ohio

With the help of our communities in cities across the country and beyond, we provide a forum for patients who want to join in the fight to find treatments and cure for PKD.

Connect with us to find out how you can make a difference in the lives of thousands in the U.S. and millions worldwide.

Walk for PKD - Your Way

Walk for PKD - Your Way! is an opportunity to join the nationwide Walk for PKD community in a way that caters to your schedule and interests while keeping things simple. Walk for PKD - Your Way! offers you the freedom to choose – how, when, and where you Walk for PKD. Participate as an individual or a team of loved ones, select a date and decide how you are going to Walk for PKD Your Way. How you raise awareness and funds for PKD research is up to you!

If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.

Walk for PKD

Get Involved

Are you interested in helping us grow the Northeast Ohio Community?

We are looking for volunteers to help us offer more opportunities in your local area. If you are interested in this opportunity to volunteer and further our shared vision to #endPKD, please complete our volunteer form and let us know how you would like to get involved.

If you have questions, please email us at volunteers@pkdcure.org.

If you have questions, or would like to help with next year's walk, please reach out to us at walkforpkd@pkdcure.org.

Now, as always, the PKD Foundation is committed to our mission of giving hope, advocating for patients, and building a community for all impacted by PKD. We'll continue supporting our community by providing important resources and timely updates on social media. If you have questions or need help navigating this unprecedented health crisis, we are here for you. Email or call (844) PKD-HOPE.

Peer Mentorship Program

If you’re looking for a shoulder to lean on or want to help others from the safety of your home, our Peer Mentor Program is a great resource:

Interested in connecting with a mentor? Please take a moment to fill out our mentee survey and our team will follow up with you via email or by phone.
Interested in becoming a peer mentor? Please complete our mentor application and a member of our staff will follow up with you by email or by phone.

Centers of Excellence

The PKD Foundation is excited to the announce the newest cohort of Centers of Excellence, Partner Clinics, and Pediatric Clinics. If you are looking for the right healthcare providers to help you manage living with PKD, visit our Centers of Excellence page to learn more about the program and to find a Center of Excellence, Partner Clinic, or Pediatric Clinic.

About Our Centers of Excellence

ADPKD Registry

There’s a new way ADPKD Registry participants can step up to provide hope today, and for future generations. The nation’s first dedicated ADPKD Registry is now also one of the first patient registries of any kind to integrate patient-provided health records. Share your health records through your provider’s online portal with a few simple steps on the ADPKD Registry.

The ADPKD Registry

Tony Bodak

PKD Connect Ambassador

Contact your local PKD Connect Ambassador to learn about local activities and connect with others in your community that understand what you are going through.

I was diagnosed with PKD in 2023 at age 52 – the first case in my family. A pioneer! The PKD Foundation has been an important source of guidance and hope throughout my journey, and I volunteer so that others living with PKD get the same great support that I have.

I’ve lived on the west side for almost my entire life, though I’ve enjoyed living on the east side, too. My wife Michelle and daughter Hallie are my reason for being. With our dogs Daisy (boxer) and Poppie (miscellaneous), we are a strong pack. I have a billion dog photos on my phone. Professionally, I’ve spent much of my career leading operations and customer experience teams in the health and wellness field.

It’s an honor to serve as the PKD Connect Ambassador for Northeast Ohio.

Contact