Our Chapters, and the volunteers who lead them, are the backbone of the PKD community. Whether you become a Chapter leader or simply attend a local event or meeting, don’t wait any longer…get involved today!

Find your Chapter

What is a Chapter?

Chapters are groups of volunteers – PKD patients, family members and friends just like you – who want to learn, connect and take action with other committed individuals. In fact, Chapters have been forming to fight polycystic kidney disease since the 1980s, funding research, telling others about the disease and providing one another with help and hope– a true sense of community.

About our Chapters

Each year, Chapter volunteers in more than 60 cities across the United States hold events to raise awareness of PKD and money for the PKD Foundation’s programs and services, as well as offer education and support. These volunteers bring to life the mission of the organization by ensuring that no one faces this disease alone.

Chapter activities focus on three key areas:

  1. Education and Support: Chapters host education meetings throughout the year, bringing in medical experts to discuss nutrition, transplantation, insurance issues and other important topics, and promote education opportunities offered by the PKD Foundation. Chapters provide opportunities for patients to connect and share, helping each other cope with the emotional aspects of a PKD diagnosis, while finding the local resources they need.
  2. Fundraising: Popular Chapter fundraising events include the Walk for PKD, as well as DIY for PKD events such as garage sales, lemonade stands and donating birthday gifts. Additionally, Chapters support programs like Run for PKD, workplace giving and vehicle donation. Chapter volunteers also help us identify individuals, corporations and foundations interested in financially supporting our work.
  3. Awareness: Chapter volunteers help raise awareness of PKD by exhibiting at local health fairs, speaking at community events and participating in the Walk for PKD.