Become a coordinator

Volunteer with us!

We are the only organization in the U.S. solely dedicated to finding treatments and a cure for PKD to improve the lives of those it affects. We do this through promoting fundraising, education, advocacy, support and awareness on a national level, along with direct services to local communities across the country.

If you’re interested in learning more about joining our volunteer team, please contact us at volunteers@pkdcure.org or fill out our volunteer interest survey and we will follow up with you.

When you join our volunteer team, your time and efforts will impact the funds raised for PKD research.

Chapter volunteer leadership positions

Chapter Coordinator

The Chapter Coordinator represents the Foundation in the local community and acts as a liaison between the Foundation and local constituents. This volunteer position monitors the Chapter email account, recruits volunteers and works closely with PKD Foundation staff members to develop and implement an annual plan for the Chapter that includes activities that support all areas of the mission of the PKD Foundation. This position could take approximately 8 hours per month; participation in volunteer training is required and participation in the annual volunteer Leadership Conference is encouraged. A two-year commitment is required.

Walk Coordinator

The Walk Coordinator recruits and leads a committee of local volunteers that are responsible for planning and executing the local Walk for PKD to meet a fundraising goal and enhance awareness of PKD and the Foundation. This is a key role that could require 20 hours a month as the event approaches. Participation in volunteer training is required and participation in the annual volunteer Leadership Conference is encouraged. A two-year commitment is required.

Education Coordinator

The Education Coordinator, working with the Chapter Coordinator, is responsible for providing opportunities for education and support for chapter members. Responsibilities include organizing logistics for educational meetings or seminars, contacting and securing speakers for educational events, providing necessary information to speakers, facilitating support groups and providing information to those affected by PKD in your local community.

Fundraising Coordinator

The Fundraising Coordinator supports the Chapter’s fundraising activities. This includes soliciting and securing monetary sponsorships and in-kind donations for Chapter events. The position also facilitates other Chapter fundraising opportunities when appropriate for the community.