At a time where millions of people are living with an incurable disease, we want to create a space for people to be inspired and empowered, and to connect with others in their community.

PKD Connection

PKD Connection is our blog which provides the PKD community a place to gain tips to proactively manage their or a loved one’s health, hear the latest news from the PKD Foundation and have a conversation with other PKD patients and families.


Voices of PKD

Voices of PKD is a collection of stories,testimonies, photos and videos that tell the story of PKD through the eyes of the PKD community.

Hear from the PKD community

Discussion forums

Discussion boards provide a forum for PKD patients, family and friends to make connections, ask questions and share stories and experiences.

Content in the discussion forums is searchable (example: Google, Bing, Yahoo, etc.). You can post anonymously or through a username you create, so your name will not be used unless you choose to do so.


Please note: The site contains user-submitted content, comments and opinions, and they do not necessarily reflect the views and opinions of the PKD Foundation. Information shared in the forums is not medical advice. Please consult your nephrologist or health care team for information and guidance specific to your health.

Postings and use of the content on this site are subject to the terms and conditions of the site.