Congressional update Nov. 2015

Congress continues to work on the FY16 budget, using the recent agreement as the blueprint. Congress hopes to complete action by Dec. 11; but, that date may slip a week. The PKD Foundation has urged Congress to accept the Senate’s funding level for the NIH. The Senate figure is higher than the House funding for NIH. PKD advocates should contact their Members of Congress and Senators with this message: Congress should accept the Senate funding level for NIH in FY16.

At the time, the HELP Committee has not released its 21st Century Cures proposal. The PKD Foundation and other rare disease advocates are disappointed that Congress could not complete work in 2015 on 21st Century Cures with guaranteed mandatory funding. We will review the Senate proposal, once it is made public, and will advise our advocates of how we will deal with the issue in 2016.