Clinical studies

For drugs and therapies to be developed for PKD, clinical studies must be conducted. Patients play a key role in the research and development process by volunteering to participate in clinical studies. From observational studies to clinical trials, you can help researchers unlock the secrets of PKD and find a treatment by participating in a study.

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* Featured Studies

Study Title
Clinical and Molecular Description of PKD1 and PKD2 Mutation Negative Carriers in ADPKD (GeneQuest) Info
A Randomised Feasibility Trial of High Water Intake in Polycystic Kidney Disease Info
PKD Clinical and Translational Core Study (PKD Core) Info
Development and Assessment of The Polycystic Liver Disease Questionnaire (PLD-Q) Info
Clinical Care of Autosomal Polycystic Kidney Disease: Retrospective Analysis and Prospective PKD Genotyping (ADPKD) Info
Polycystic Kidney Disease Data Repository Info
Lanreotide in Polycystic Kidney Disease Study (LIPS) Info
A Study Measuring Quality of Life, Treatment Preference and Satisfaction of ADPKD Patients in Europe Info
Analysis of Clinical and Molecular Genetic Data Influencing the Evolution and Response to Therapy of ADPKD Patients (Autosomal Dominant Polycystic Kidney Disease) Info
Canadian Medical Assessment of JINARC™ Outcomes Registry Info
Efficacy of Tolvaptan on ADPKD Patients Info
The German ADPKD Tolvaptan Treatment Registry Info
Genetics of Brain Aneurysm Formation in Autosomal Dominant Polycystic Kidney Disease Info
Dynamic Measurement of Renal Functional Reserve as a Predictor of Long-Term Renal Function Info
Samsca PMS in ADPKD Patients Info
Tolvaptan-Octreotide LAR Combination in ADPKD Info
Assessment of longitudinal changes in endothelial function and oxidative stress in normotensive patients with ADPKD Info
Metformin as a Novel Therapy for Autosomal Dominant Polycystic Kidney Disease (TAME) Info
Tesevatinib in Subjects With ADPKD Info
Pilot Study of Niacinamide in Polycystic Kidney Disease (NIAC-PKD2) Info
ELiSA (Evaluation of Lixivaptan in Subjects with ADPKD) Info
A Clinical Trial of Water Therapy for Autosomal Dominant Polycystic Kidney Disease Info
A Phase 2 Trial of the Safety and Efficacy of Bardoxolone Methyl in Patients With Rare Chronic Kidney Diseases Info
Daily Caloric Restriction and Intermittent Fasting in Overweight and Obese Adults With Autosomal Dominant Polycystic Kidney Disease Info
Using Preimplantation Genetic Diagnosis in Autosomal Dominant Polycystic Kidney Disease Patients: a Multicenter Clinical Trial Info
Statin Therapy in Patients with Early Stage ADPKD Info
Feasibility Study of Metformin Therapy in ADPKD Info
Safety, Pharmacokinetics, Tolerability and Efficacy of Tolvaptan in Children and Adolescents With ADPKD (Autosomal Dominant Polycystic Kidney Disease) Info
A Safety, Pharmacokinetic, Single Ascending Dose Study of Tesevatinib in Pediatric Subjects With Autosomal Recessive Polycystic Kidney Disease (ARPKD) Info
Clinical and Molecular Investigations Into Ciliopathies Info
Curcumin Therapy to Treat Vascular Dysfunction in Children and Young Adults With ADPKD Info
An international multicenter registry study on autosomal recessive polycystic kidney disease (ARPKD) - ARegPKD Info
PKD Biomarkers Repository Study Info
Transplant Registry: Patients Who May Require Transplantation and Those Who Have Undergone Transplantation of Liver, Kidney and/or Pancreas Info
Post-Marketing Surveillance Study of Tolvaptan in Patients With ADPKD Info
UAB HRFD Core Center: Core A: The Hepato/Renal Fibrocystic Diseases Translational Resource Info

All about clinical studies

PKD clinical studies fast draw

Imagine having the power to help unlock the secrets of polycystic kidney disease (PKD) and help researchers discover treatments. Participating in clinical studies is one of the most effective ways for people diagnosed with PKD to get involved in discovering and developing treatments. Learn about the different types of studies and how you can help advance PKD research.

Participate in clinical studies to discover PKD treatments and improve your health

For drugs and therapies to be developed for PKD, clinical studies must be conducted. Patients play a key part. Learn how you can help unlock the secrets of PKD and find a treatment by participating in a study.

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Alerts and updates

One of the largest impediments to clinical trial patient participation begins with awareness. We believed it was our goal to address this challenge and launched the Clinical Trials Awareness Program (CTAP), an aggressive program to increase awareness of PKD clinical studies among patients and families. The goal is to simplify the process of finding clinical studies for PKD patients in their geographic area by sending Accelerating Clinical Trials (ACT) alert emails about studies that are being conducted.