Find the right resource

Every resource for your needs

We are committed to providing patients with the education they need to cope with PKD. Approved by our Scientific Advisory Committee, these resources will answer some of your most specific questions about the disease.

Browse by Category

Young children

Children with ARPKD and ADPKD require special care and consideration. These resources cover key aspects in of managing the disease in young children.

Webinar Wednesdays

Webinar Wednesdays, with PKD Foundation Chief Scientific Officer (CSO) David Baron, Ph.D., occur the third Wednesday of each month at Noon Central Time. These chats highlight targeted topics pertaining to the science of PKD.

Transplantation

It is important to educate yourself and your family about transplantation as early as possible so that you are prepared.

The basics of PKD

If you're just diagnosed or looking for a refresher, this will cover all the basics of the disease.

Teens and young adults (13-20)

Teens and young adults have their whole lives ahead of them but living with PKD requires some extra attention. This section will cover the special needs of a teen and young adult living with PKD.

Researchers

The dedicated individuals who have made it their career to research polycystic kidney disease have a variety of expertise and focus areas.

PKD Progress

Our <em>PKD Progress</em> magazine covers the latest in polycystic kidney disease research and information. <em>PKD Progress</em> wouldn't be available without your help and interest in finding a cure for PKD.

Physicians

Nephrologist, urologist, surgeon, anesthesiologist, oh my! So many types of physicians make up a PKD patient's medical care team.

Living with PKD

Staying positive and living your best life is key to staying healthy. This will cover ways to help you do this.

Health insurance

Paying for health-related expenses is a complicated and stressful business. We provide information to help you navigate through this as best you can.

Great reads

There are some great books out there that touch on the many aspects of PKD. Some have storylines about PKD, others are written by volunteers and friends of the foundation. A percentage of the sales of these books will be donated to the Foundation.

Grants and funding

We are the second largest funder of PKD research in the United States. This shows the amazing research we have funded over the last three decades.

Drug therapy and treatments

Learn about potential treatments for PKD that are in the pipeline and being employed in other areas of the world.

Caregiving

Caregivers work tirelessly to support their loved ones with PKD. This will cover ways these dedicated people can best help their loved one by remembering to take care of themselves as well.

Basic research and studies

Basic research to understand PKD is the foundation that all therapy development is based on. Learn about key discoveries and the ongoing effort to find a treatment and cure for PKD.<ins datetime="2020-04-10T21:29:09+00:00"></ins>

Advocacy

Statistics support our messages and add credibility. Here are some helpful resources about PKD to take with you and leave with the person you are meeting with.

A to Z definitions

From aneurysm to zebrafish – we've got you covered.

Complete and continuing series

This is an exciting time for the science of PKD. We will keep you up to date with information about what’s happening in PKD research and how people like you are bravely living their best lives despite PKD.

Webinar Wednesdays

Webinar Wednesdays, with PKD Foundation Chief Scientific Officer (CSO) David Baron, Ph.D., occur the third Wednesday of each month at Noon Central Time. These chats highlight targeted topics pertaining to the science of PKD.

PKD Progress

Our PKD Progress magazine covers the latest in polycystic kidney disease research and information. PKD Progress wouldn't be available without your help and interest in finding a cure for PKD.

Great reads

There are some great books out there that touch on the many aspects of PKD. Some have storylines about PKD, others are written by volunteers and friends of the foundation. A percentage of the sales of these books will be donated to the Foundation.