We are committed to providing patients with the education they need to cope with PKD. Approved by our Scientific Advisory Committee, these resources will answer some of your most specific questions about the disease.
Cardiovascular Issues and Cardiac Valve Abnormalities
As you manage living with PKD, keeping your heart healthy is very important to overall health. Learn about the issues that could affect your heart and how you can maintain heart health as you manage living with PKD.
Milwaukee Chapter Nutrition Webinar
In this webinar from the Milwaukee Chapter, registered dietician, nutritionist, and author of “Brilliant Eats: Simple and Delicious Recipes for Anyone Who Wants to be KidneyWise,” Kelly Welsh joins us to discuss kidney nutrition essentials.
What to look for in a transplant center
Do you want to learn more about transplantation? In this webinar featuring Executive Director of Transplant Programs at UC Davis Medical Center, Melissa Blevins Bein, MS, RN, you’ll learn about: What to look for in a transplant center Tests and evaluations required for […]
FDA Approves the First Treatment for ADPKD
In this webinar, learn about JYNARQUE™ (tolvaptan), the new FDA-approved treatment for ADPKD. Hosted by Ronald Perrone, M.D., Associate Chief, Division of Nephrology at Tufts Medical Center and Professor of Medicine at Tufts University School of Medicine. Originally aired April 2018
Tolvaptan Clinical Trial Results
Learn the latest about the REPRISE (tolvaptan) clinical trial results from Ron Perrone, M.D., nephrologist at Tufts University and long-standing member of the PKD Foundation’s Scientific Advisory Committee (SAC). Dr. Perrone is joined by Terry Watnick, M.D., member of both […]
Q&A with Terry Watnick, M.D.
Guest speaker and PKD Foundation Scientific Advisory Committee Chair Dr. Terry Watnick answers questions from viewers. Originally aired May 2017
Guest speaker Peter Harris, Ph.D., from Mayo Clinic discusses what we know about PKD genes and how this information could be used to inform disease progression and develop potential treatments. Originally aired April 2017
This webinar from Lisa King, RN, CCTC and Margo Vandrovec, MSW, LICSW, CCTSW was originally part of an exclusive, online education conference, “What’s New in PKD: A Day of Learning” held on March 25, 2017. The event featured PKD experts […]
Getting ready for kidney transplantation
This webinar from Dr. Naim Issa was originally part of an exclusive, online education conference, “What’s New in PKD: A Day of Learning” held on March 25, 2017. The event featured PKD experts from Mayo Clinic in Rochester, Minn., discussing […]
Transplant evaluation and financial coordination
This webinar from Tammy Kozel, RN, BSN, MSN, CCTC and Erin Hamilton, LICSW, MSW was originally part of an exclusive, online education conference, “What New in PKD: A Day of Learning” held on March 25, 2017. The event featured PKD […]
This webinar from Dr. Patrick G. Dean was originally part of an exclusive, online education conference, “What’s New in PKD: A Day of Learning” held on March 25, 2017. The event featured PKD experts from Mayo Clinic in Rochester, Minn., […]
Anatomy of the kidney
Dr. Baron discusses the structure and function of our kidneys and how they keep us hydrated and healthy. Originally aired March 2017
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It is important to educate yourself and your family about transplantation as early as possible so that you are prepared.
Dialysis is a kidney replacement option that does some of the things healthy kidneys do. It is needed when your own kidneys fail or can no longer function well enough to take care of your body’s needs.
This is an exciting time for the science of PKD. We will keep you up to date with information about what’s happening in PKD research and how people like you are bravely living their best lives despite PKD.
Webinar Wednesdays, with PKD Foundation Chief Scientific Officer (CSO) David Baron, Ph.D., occur the third Wednesday of each month at Noon Central Time. These chats highlight targeted topics pertaining to the science of PKD.
There are some great books out there that touch on the many aspects of PKD. Some have storylines about PKD, others are written by volunteers and friends of the foundation. A percentage of the sales of these books will be donated to the Foundation.