Children’s Hospital of Philadelphia

Clinical Studies

A Trial of Bardoxolone Methyl in Patients with ADPKD (FALCON) Novel Imaging in ARPKD ARPKD Cardiovascular Research Study A Study to See if Tolvaptan is Safe in Infants and Children Who at Enrollment Are 28 Days to Less Than 18 Years Old With Autosomal Recessive Polycystic Kidney Disease (ARPKD)

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Last Updated : 9/15/2022
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Disclaimer

The PKD Foundation has prepared this proprietary list of PKD Clinics and Centers so that patients can find expert help.

The information in this database is reported by the clinic representatives and is not verified. The Foundation cannot warranty its accuracy, and inclusion on this list is not intended as an endorsement. Please contact us with any changes or corrections.

About

In the Division of Nephrology, we act in partnership with your family to treat your child with kidney disease. We offer support services that help your child reach the best level of physical, social and emotional health possible, while living with what can be a chronic, life-changing disease.

 

Our physicians and staff are known for their ability to diagnose, treat and care for children with all forms of kidney disease. Your child’s team will offer superb clinical care and an equal measure of understanding and compassion.

Number of currently followed ADPKD patients 10-100
Number of currently followed ARPKD patients 10+
Number of currently followed pediatric patients 10+
Number of kidney transplants (avg/year) 10-100
Number of live donor transplants (avg/year) less then 10

  • SEE ARPKD PATIENTS

    Yes

  • PEDIATRIC CLINIC

    Yes

ASSOCIATED SPECIALTIES

  • Affiliated kidney transplant center
  • Cardiologists
  • Dermatologist
  • Dieticians or Nutritionists
  • Genetic testing and counseling center
  • High-risk pregnancy obstetricians
  • Interventional radiologist (familiar with cyst aspiration)
  • Liver specialists with expertise in PKD (or PLD specialists)
  • Mental health specialists
  • Neurosurgeon/neurologists (familiar with aneurysm screening and treatment)
  • Social workers
  • Urologists

DIALYSIS SERVICES

  • Hemodialysis
  • Home hemodialysis
  • Peritoneal dialysis

PEDIATRIC PKD CLINIC

  • Dedicated pediatric dialysis unit
  • Pediatric dieticians
  • Hepatologists (familiar with Congenital Hepatic Fibrosis)
  • Child Life Specialists

ADDITIONAL SERVICES

Erum A. Hartung, MD, MTR (pediatric nephrologist) and Jessica W. Wen, MD, MTR (pediatric gastroenterologist and hepatologist) co-direct the Combined Kidney-Liver Program (https://www.chop.edu/services/combined-kidneyliver-program) a quarterly clinic specializing in the care of patients with ARPKD and other genetic diseases causing chronic kidney and liver disease.

  • Affiliated Kidney Transplant Center

    Yes

  • Performs Nephrectomy Procedures

    Yes

  • Participates in Current Clinical Studies

    Yes

  • A steroid minimization (rapid withdrawal) protocol is available for appropriate patients.

  • Native nephrectomy is considered either before or during transplant as appropriate.

  • PRESCRIBES TOLVAPTAN

    No

  • PROVIDES MENTORSHIPS FOR TRAINEES

    Yes


Find more transplant center statistics here

Nephrologists and Researchers

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