
Children’s Hospital of Philadelphia
Clinical Studies
Last Updated : 9/15/2022
Healthcare Insurance
Please call the clinic to find out if your care would be covered by your insurance.
Disclaimer
The PKD Foundation has prepared this proprietary list of PKD Clinics and Centers so that patients can find expert help.
The information in this database is reported by the clinic representatives and is not verified. The Foundation cannot warranty its accuracy, and inclusion on this list is not intended as an endorsement. Please contact us with any changes or corrections.
About
In the Division of Nephrology, we act in partnership with your family to treat your child with kidney disease. We offer support services that help your child reach the best level of physical, social and emotional health possible, while living with what can be a chronic, life-changing disease.
Our physicians and staff are known for their ability to diagnose, treat and care for children with all forms of kidney disease. Your child’s team will offer superb clinical care and an equal measure of understanding and compassion.
Number of currently followed ADPKD patients | 10-100 |
Number of currently followed ARPKD patients | 10+ |
Number of currently followed pediatric patients | 10+ |
Number of kidney transplants (avg/year) | 10-100 |
Number of live donor transplants (avg/year) | less then 10 |
SEE ARPKD PATIENTS
YesPEDIATRIC CLINIC
Yes
ASSOCIATED SPECIALTIES
- Affiliated kidney transplant center
- Cardiologists
- Dermatologist
- Dieticians or Nutritionists
- Genetic testing and counseling center
- High-risk pregnancy obstetricians
- Interventional radiologist (familiar with cyst aspiration)
- Liver specialists with expertise in PKD (or PLD specialists)
- Mental health specialists
- Neurosurgeon/neurologists (familiar with aneurysm screening and treatment)
- Social workers
- Urologists
DIALYSIS SERVICES
- Hemodialysis
Home hemodialysis- Peritoneal dialysis
PEDIATRIC PKD CLINIC
- Dedicated pediatric dialysis unit
- Pediatric dieticians
- Hepatologists (familiar with Congenital Hepatic Fibrosis)
- Child Life Specialists
ADDITIONAL SERVICES
Erum A. Hartung, MD, MTR (pediatric nephrologist) and Jessica W. Wen, MD, MTR (pediatric gastroenterologist and hepatologist) co-direct the Combined Kidney-Liver Program (https://www.chop.edu/services/combined-kidneyliver-program) a quarterly clinic specializing in the care of patients with ARPKD and other genetic diseases causing chronic kidney and liver disease.
Affiliated Kidney Transplant Center
YesPerforms Nephrectomy Procedures
YesParticipates in Current Clinical Studies
Yes
A steroid minimization (rapid withdrawal) protocol is available for appropriate patients.
Native nephrectomy is considered either before or during transplant as appropriate.
PRESCRIBES TOLVAPTAN
NoPROVIDES MENTORSHIPS FOR TRAINEES
Yes
Find more transplant center statistics here
Nephrologists and Researchers
-
PKD primary focus
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Stephanie Clark, MD, MPH, MSHP
Familiar with PKD -
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Familiar with PKD
-
Erum Hartung, MD: Intracranial aneurysms and vascular abnormalities in ARPKD
PKDF funded-research