Last Updated : 06/01/2022
Healthcare Insurance

Please call the clinic to find out if your care would be covered by your insurance.


Disclaimer

The PKD Foundation has prepared this proprietary list of PKD Clinics and Centers so that patients can find expert help.

The information in this database is reported by the clinic representatives and is not verified. The Foundation cannot warranty its accuracy, and inclusion on this list is not intended as an endorsement. Please contact us with any changes or corrections.

About

PKD Center at Tufts Medical Center

 

At the Center for Polycystic Kidney Disease at Tufts Medical Center, our goal is to give patients a lifetime of individualized care. Our team treats patients with both autosomal dominant polycystic kidney disease (ADPKD) and the less common autosomal recessive polycystic kidney disease (ARPKD).

Most importantly, we understand what it’s like to live with PKD. We’re here to address all of your needs, from pain management and genetic counseling to providing access to promising new drug therapies. Dr. Perrone and his team have extensive experience in the use of tolvaptan, both in clinical trials and as a prescription drug and can determine whether this medication is an option for you.

Number of currently followed ADPKD patients 100+
Number of currently followed ARPKD patients 3-10
Number of kidney transplants (avg/year) 10-100
Number of live donor transplants (avg/year) 10-100
  • SEE ARPKD PATIENTS

    Yes
  • PEDIATRIC CLINIC

    Yes

ASSOCIATED SPECIALTIES

  • Affiliated kidney transplant center
  • Cardiologists
  • Dermatologist
  • Dieticians or Nutritionists
  • Genetic testing and counseling center
  • High-risk pregnancy obstetricians
  • Interventional radiologist (familiar with cyst aspiration)
  • Liver specialists with expertise in PKD (or PLD specialists)
  • Mental health specialists
  • Neurosurgeon/neurologists (familiar with aneurysm screening and treatment)
  • Social workers
  • Urologists

DIALYSIS SERVICES

  • Hemodialysis
  • Home hemodialysis
  • Peritoneal dialysis

PEDIATRIC PKD CLINIC

  • Dedicated pediatric dialysis unit
  • Pediatric dieticians
  • Hepatologists (familiar with Congenital Hepatic Fibrosis)
  • Child Life Specialists

ADDITIONAL SERVICES

Tufts maintains a voluntary IRB-approved PKD Registry to facilitate identification of subjects for clinical trials. New PKD patients only: call Lorna Davies to schedule an appointment at 617-636-0563.

  • Affiliated Kidney Transplant Center

    Yes
  • Performs Nephrectomy Procedures

    Yes
  • Participates in Current Clinical Studies

    Yes
  • PRESCRIBES TOLVAPTAN

    Yes
  • PROVIDES MENTORSHIPS FOR TRAINEES

    Yes


Find more transplant center statistics here
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