Last Updated : 10/24/2019
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Disclaimer

The PKD Foundation has prepared this proprietary list of PKD Clinics and Centers so that patients can find expert help.

The information in this database is reported by the clinic representatives and is not verified. The Foundation cannot warranty its accuracy, and inclusion on this list is not intended as an endorsement. Please contact us with any changes or corrections.

About

PKD Center at the University of Pennsylvania

 

Penn Medicine’s Polycystic Kidney Disease (PKD) Clinic provides complete care, diagnosis and treatment for autosomal dominant polycystic kidney disease (ADPKD). ADPKD is a complex genetic condition affecting multiple body systems, with renal (kidney) manifestations including hypertension, renal pain, kidney stones, varying degrees of renal insufficiency and end stage renal disease requiring dialysis or kidney transplantation.

 

ADPKD is the most common of all the hereditary cystic kidney diseases. It affects approximately 600,000 people in the U.S. alone and occurs in approximately one in every 400 to 1,000 live births. ADPKD is characterized by progressive cyst development and bilaterally enlarged kidneys with multiple cysts. There are two genetic mutations, PKD1 and PKD2. Individuals with PKD1, the more progressive form, have an abnormality on chromosome 16, which is responsible for approximately 85 percent of ADPKD cases. Approximately 50 percent of individuals with ADPKD develop end stage renal disease by the age of 60.

Number of currently followed ADPKD patients 100+
Number of currently followed ARPKD patients 10+
Number of kidney transplants (avg/year) 100+
Number of live donor transplants (avg/year) 10-100
  • SEE ARPKD PATIENTS

    Yes
  • PEDIATRIC CLINIC

    No

ASSOCIATED SPECIALTIES

  • Affiliated kidney transplant center
  • Cardiologists
  • Dermatologist
  • Dieticians or Nutritionists
  • Genetic testing and counseling center
  • High-risk pregnancy obstetricians
  • Interventional radiologist (familiar with cyst aspiration)
  • Liver specialists with expertise in PKD (or PLD specialists)
  • Mental health specialists
  • Neurosurgeon/neurologists (familiar with aneurysm screening and treatment)
  • Social workers
  • Urologists

DIALYSIS SERVICES

  • Hemodialysis
  • Home hemodialysis
  • Peritoneal dialysis

ADDITIONAL SERVICES

  • Affiliated Kidney Transplant Center

    Yes
  • Performs Nephrectomy Procedures

    Yes
  • Participates in Current Clinical Studies

    Yes
  • Steroid-free protocols-discussed if there is indication.

  • Patients with very large polycystic kidneys are always seen by transplant surgery team.

  • PRESCRIBES TOLVAPTAN

    Yes
  • PROVIDES MENTORSHIPS FOR TRAINEES

    Yes


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