Executive order, new rules, and legislative priority updates — Part Four

...60-day public open-comment period where everyone has the opportunity to make their opinion heard. Once that period is over (sometime in mid-February), each agency will read and consider all comments...

Looking at appropriations for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Funding

...means for PKD patients and their families. Q: What is HR 2740? Alexis: HR 2740 is a bill approved by the House Appropriations Committee that would provide $41.084 billion for...

Day-to-day living for children with PKD

...kidney disease (ARPKD) and autosomal dominant polycystic kidney disease (ADPKD) and answers your questions.. Erum Aftab Hartung, M.D., MRT Pediatric Nephrologist | Children’s Hospital of Philadelphia Erum Aftab Hartung, M.D.,...

Understanding liver manifestations of PKD in children

...at congenital hepatic fibrosis (CHF). Dr. Fischer will address clinical management of liver complications and will answer your questions. Ryan Fischer, M.D. Pediatric Transplant Hepatologist | Children’s Mercy Hospital Ryan...

Understanding new rules and regulations around kidney donation — Part One

...efforts to address issues important to PKD and the larger CKD community. If you have questions, don’t hesitate to reach out via the comments section below or email us at...